[tri-med] Re: re-introducing myself

Praise God!!

Blessings,
Katy Vega wife to Jim, mom to Gabriel 19, Naomi 17, Alexander 15, Hannah 13, 
Amariah
11, BenJo almost 9, Christianna 7, Elena 4, Isabella 2 and Ian Dante 39 + weeks 
in
utero T18.

StamTORCH@xxxxxxx wrote:

> It has been some time since I posted here but I am finally getting it
> together (sort of) and thought I should join in again.
> I have a son, Michael, with t-18 mosaic.  You may remember him as the one who
> had a terrible fear of water.  I spent his first year sponge bathing him as
> he would scream and turn purple if I emerged him in water.  Then last summer 
> he
> went into a swimming pool with me holding him mostly out of the water.  I
> think I posted a picture of this big day.
>
> Well, times have changed and so has Michael.  He now loves water.  He can't
> get enough!  He wants to play with it, bath in it and even pours it over his
> head.  I cannot believe the difference.
>
> Anyway, I have lurked for the last year and tried to keep up.  This list
> moves so quickly it has not been easy.
>
> Michael is now 2 1/2.  He is doing beautifully.  He has had 2 dilations for hi
> s TE fistula repair but other than that he has been healthy and strong.
> He is walking and climbing.  He even runs (not great but hey).  He has
> started to speak which is just such a joy I can't even tell you.
> If I ask him his name he answers My pull.  He stutters so it comes out
> my,my,my,my PULL.  He definitely understands whatever I say.
>
> Last year my DH and I received a call about a baby born with Trisomy 21
> (downs syndrome).  She was 11 days old and was being released from the 
> hospital.
> Would we be willing to take her as pre-adoptive/foster parents?  We said yes
> but I as concerned for Michael who was 18 months at the time.  He was just
> beginning to walk and making some great progress.  I was afraid he may 
> regress with
> a baby, who also has special needs, in the house.  But we took that leap of
> faith and I can't tell you how rewarding it has been.
> Michael grew quickly into a big brother role and did not regress at all.  I
> think, if anything, he began to improve more rapidly and challenged himself
> more.  He took more risks physically.
> He has showered this baby with such love and affection I am amazed at the
> bond he has formed with her.  We have been told how lucky she is we took her 
> but
> I must say how blessed we are she came into our lives.  She has been Michael's
> angel.
>
> His health has been good, he has been eating well and regular foods and now
> that he has begun talking I can't express how happy we are. He has a wicked
> sense of humor and gets himself into trouble plenty.  If I dare to complain 
> about
> one of his antics my mother really lets me have it.  She tells me I should be
> thanking God for everytime I find him upstairs pulling apart a toilet paper
> roll.  He got himself upstairs!!!
> I never thought I would be grateful for the terrible 2 stage.
>
> Well, I look forward to joining in again and I hope I can keep up with you
> all.
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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