[tri-med] question regarding growth

  Hi all,
  My Caroline, through all her trials and tribulations, has always continued to 
grow fine length wise.  She grew 6 inches in 6 months while she BIG TIME 
struggled to gain weight.  Well, she has been on a feeding pump for 5 months 
and has gained a fairly good amount of weight.  We have had some recent issues 
and have backed her feeds down for the last month, but she is still getting WAY 
closer to her minimum than she did in her early months.  

  It now seems that in the last 3 months, she has barely grown at all!  Maybe 
an inch if we are lucky.  Is that normal for any other triers?  I was hopeful 
that since her growth continued so steadily during her first 6 months, when she 
struggled to get almost any calories, that when we got her closer to her 
minimum (and we were OVER her minimum for a couple months before the recent 
problems started), that she would continue to grow steadily.  I have heard that 
some children with Caroline's disorder (and there are only a few) need growth 
hormone therapy.  I have heard that mentioned on this list too.  Is the lack of 
growth apparent initially?  Or does it happen like Caroline and they just stop 
growing???  If so, when do you start this therapy?  

  Thanks in advance...you all are really the experts!!!

  Irene
  (Christina - 30 months and Caroline - 10 months with partial trisomy 17p) 
  http://www.babiesonline.com/babies/c/carolinerochelle

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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