[tri-med] Re: pneumonia/intubation/futility?

Hi Karen :o) 
I'm so sorry to hear about your aunt...I know that it must be soooooooo
maddening to not be able to get to the bottom of the red tape to find out
how you could possibly memorialize her memory. It's very disrespectful of
the dead to treat them like that after passing. I can't even imagine my Dad
not being properly laid to rest in accordance with his wishes :o(

Sorry about your car too...that truly bites!!!

My hats off to you home schooling Alex...that wouldn't work for us even
though it sounds quite attractive at times. Maybe it's the best that the
decision was essentially taken out your hands? Regardless...I'm confident
you will handle it with great aplomb!!

So what did Alex name his new kitty??? I'm so sorry to hear about Bonnie :o(
It would rip our hearts out to have to let Trooper go...so I can imagine how
torn apart you both must be :o( It makes a lot of sense to wait before
getting another service dog...

So are you thinking seriously of moving to Florida??? LOL Seriously
though...are you thinking of taking the position at Appin Hall and moving
there??? It truly sounds like Shangri-La and I'm happy and wistfull at the
same time that you get to go back :o) I would SOOOOOOO love for our family
to be able to come and experience that place :o)

Unfortunately...we won't be in Utah this year...it's one of the most
expensive trips for us out of all the locals for a conference. I always to
request funding and this year we're instead asking for funding for a Tech
Talk for Devon...more important at the moment...but we WILL be in Colorado
next year. I've heard great things about medical facilities and doctors
there :o) And I've always wanted to go there just because it's beautiful :o)

I'm so sorry you've been sick but it's great that Alex is able to learn to
do these tasks to help out and he's helping himself at the same time :o)

I have such high hopes for your settlement to come to FABULOUS
fruition...I'll be waiting :o)

I'll be writing a marathon update pretty soon...so beware...it's coming....

Take care and I miss you...hugs to you, the master and his entourage  :o)

Love,
Penny...loving & devoted wife to Joe, the best husband in the world...mom to
Nick (16 yrs old...lover of Fishing, Dragons, Turtles, Blue Collar Comedy
Tour, RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (11
yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Elmo, & food in
general. Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper
the Wonder Dog...our 10? year old yellow lab adopted from FL Lab Rescue
12/13/02 :o) Please visit the webpage my wonderful friend Karen made for me
on our trisomy listserv at:
http://www.trisomyonline.org/victor.html      
AND...Devon's moment of glory in Exceptional Parent Magazine...
http://www.eparent.com/familiarfaces/ffaces_4_01.htm
AND...see our Trooper on FL Lab Rescue's website at:
http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
AND :o) http://livingwithtrisomy13.org/album9.htm
AND http://web.coehs.siu.edu/Grants/TRIS/
"Normal people worry me"
 



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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