[tri-med] Re: pneumonia/intubation/futility?

Thanks for that Karen. Sorry about that innaccuracy.
Katy
--- Karen <karens@xxxxxxxxxxxxxxxx> wrote:

> ----- Original Message ----- 
> From: "Katy Roberts"
> >> We had a sad but
> > famous case in Britain over the last few years
> about a
> > baby called Charlotte born with T18 and had
> multiple
> > medical issues and the doctors went to court to
> win
> > the right to not intervene or ventilate if she
> should
> > die. This was against the parents wishes. The
> doctors
> > won.
> 
> Katy,
> Just as a matter of accuracy, Baby Charlotte didn't
> have T-18, that was Luke 
> Winston Jones. Charlotte was a prem baby, it was
> Luke Winston Jones that had 
> T-18. His case ran close on the heels of Charlotte,
> with a similar court 
> outcome. Luke however did pass because the hospital
> failed to implement the 
> measures that the court said they should. All of the
> clippings from the 
> newspaper for his story are on my website.
> 
> The sad reality of all these cases is that legally
> the doctors do not have 
> to treat if they do not want to. In some ways it
> makes sense - otherwise for 
> example a perfectly healthy person could demand that
> a doctor remove a 
> perfectly healthy limb simply because they wanted it
> removed. But it doesn't 
> make sense for our kids. It is so frustrating - I
> have just spent months 
> helping a family here in Australia with the same
> issue, and the bottom line 
> is that while we can threaten legal action the
> reality is that it probably 
> would not be effective because of the way the law
> stands at the present 
> point in time. In all of our respective countries it
> is the medical 
> profession that determine quality of life and what
> it is - not us as 
> parents. Our best hope here in Australia has been to
> find doctors willing to 
> operate / treat - and its not always easy because
> even when we do they (the 
> hospitals / system) then retaliate and sanction the
> doctors.
> 
> Life consists not in holding good cards but in
> playing those you hold well.
>                                             -- Josh
> Billings
> 
> Keep Looking For Rainbows!!
>    _--_|\
>  /Karen \
>  \ _.--._ /
>           v Karen, Mum to Alex (12 years, T-18
> Mosaic)
> http://members.optushome.com.au/karens
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 
> 



        
        
                
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