[tri-med] Re: please help me to decide (edward's syndrome)

Hello Rohaizah
I am so sorry that you are facing this difficult decision. We had our
baby Ava Grace last October and she is doing really really well-but she
did have heart surgery at 3 months.  My experience was that the doctors
are not very hopeful in these situations.  We had an amniocentisis and
they found that our baby is "mosaic" trisomy 18 so not all of her cells
are affected.  Attached is a picture of our happy little girl.  You may
want to check out this website for support and a lot of answers it is
www.trisomy18.org 

There is a lot to consider.  I highly reccommend that you go to the
other website too.  It is full of parents facing the same situation as
you right now. Some go on and carry to term to meet their little one and
often say goodbye.  Some say goodbye early and terminate their
pregnancy.  I think it will be very helpful to read the stories of
others.

Audry


>>> rohai1964@xxxxxxxxx 3/28/2007 8:17 PM >>>
Hi,
I am a new member to this group.  I am from Malaysia.  I am 19 weeks
pregnant and I was told by my doctor 2 days ago that my baby is having
edwards syndrome.  The doctor told me that the chance for the baby to
survive is very minimal.  She asked me whether I want to continue the
pregnancy or just terminate the pregnancy.  I am so confuse right now! 
I might feel guilty if i terminate the pregnancy as i can feel the baby
moving in my tummy ; i already feel the bond between me and the baby and
of course I love him so much!  But at the same time i also don't want
the baby to suffer after his birth.  
I know some of u might have baby with the syndrome.  may I know how is
it dealing with this baby during their birth ... does it mean that my
baby will have to be in the hospital for the rest of his life?  How do u
feel to see your baby suffer with many complications? ... please share
with me your experience as it might help me to make my decision. 

The doctor gives me 1-2 weeks to make up my mind.  I really need your
response and advise.

Thank u very much.
 
Rohaizah Salleh



 
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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