Alssalam Alaykom, As you mentioned it is a very difficult decision to make knowing what you know. I can only share my personal experience regarding my daughter Nejoud. When Nejoud was born, almost a year ago, we had no idea that she was a Trisomy 18 (Edwards Syndrome). Her condition was a surprise to us for we did not know anything about this condition and were not ready for it. The doctors said she has a slim chance of living (may be a year). I started to make funeral arrangements. Nejoud was a full term baby (born 11-days before her due date) and all previous tests during pregnancy were normal according to my wife' doctors. I can only tell you that had we known before we would have decided to keep the baby anyway. She is a very beautiful bundle of joy. She has given us a lot of love from day one. I can see the slow progress in her growth and development and keep asking Allah to cure her and guard her. From the different readings on this web site I can tell you that their is no two cases alike. Every baby has a different set of conditions and different limitations and problems. My daughter for example has bad refluxes as the case with most Trisomy babies; however the severity is different from one baby to the other. G-tube feeding is also common (Surgery in stomach) to be able to feed the baby. Most babies has difficulty eating through the mouth. As the baby gets older you learn to deal with the dynamics of the situation. Somehow you find the strength and determination to deal with it and take in strides. Remember that whatever decision you make it is your personal choice and should always be the RIGHT choice for you. Best wishes and may Allah guid you to the right choice... -- moe (dad), Rana (mom), Hamzeh (big brother) and Sweet Nejoud (T-18, Born 4/4/2006) Quoting salleh rohaizah <rohai1964@xxxxxxxxx>: > Hi, > I am a new member to this group. I am from Malaysia. I am 19 weeks pregnant > and I was told by my doctor 2 days ago that my baby is having edwards > syndrome. The doctor told me that the chance for the baby to survive is very > minimal. She asked me whether I want to continue the pregnancy or just > terminate the pregnancy. I am so confuse right now! I might feel guilty if > i terminate the pregnancy as i can feel the baby moving in my tummy ; i > already feel the bond between me and the baby and of course I love him so > much! But at the same time i also don't want the baby to suffer after his > birth. > I know some of u might have baby with the syndrome. may I know how is it > dealing with this baby during their birth ... does it mean that my baby will > have to be in the hospital for the rest of his life? How do u feel to see > your baby suffer with many complications? ... please share with me your > experience as it might help me to make my decision. > > The doctor gives me 1-2 weeks to make up my mind. I really need your > response and advise. > > Thank u very much. > > Rohaizah Salleh > > > > > ____________________________________________________________________________________ > Need Mail bonding? > Go to the Yahoo! Mail Q&A for great tips from Yahoo! Answers users. > http://answers.yahoo.com/dir/?link=list&sid=396546091 > > Building ___ooOOoo__ Rainbows > www.trisomyonline.org > Families Helping Families On-line > > Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line