If you should decide to continue (and I do hope you do) you may wish to visit a wonderful site for some more support. http://www.prenatalpartnersforlife.org/ In a message dated 03/30/07 12:16:14 Eastern Daylight Time, meierlaw@xxxxxxxxxxxxxx writes: Hi, Rohaizah: My heart goes out to you because I know how difficult it is to carry a baby with Edward's Syndrome and the many decisions that need to be made concerning their well-being. I have had two children with that condition. First, let me say that you never know what will happen with your baby. My first daughter, Rachel, will be 6 years old in three weeks and she has a very happy life! Rachel requires care all day/every day because she has many needs, but we adore her and she is wonderful. My youngest daughter, Regan, also had Edward's Syndrome and she lived only 59 hours. Regan's heart defects were so sever that there was nothing the doctors could do to save her life even for a few months. But Regan was wonderful, too! Below is a part of the eulogy my husband and I wrote for Regan's funeral. I think many of the members on this list would agree with what we wrote: "Perhaps we could have had a healthy baby, but it wouldn't have been Regan. And Regan was perfect. Regan had a heart defect and wasn't meant to live more than 3 days. And there is no doubt that we would gladly take a minute of precious time with Regan over an eternity with a different child. We were so lucky to have known her, to have had her touch our lives the way she did. And yes, it's so very sad that she is gone, but we were so blessed to have had her the 3 days we did.... Regan has given us the ability to accept our lives as they are and know that it is OK; something can be temporary and still be life altering and wonderful. Regan brought out the best in us by making us live our faith by showing the true strength and courage it takes to accept life just the way it is; just the way Regan did." I don't think you will be sorry if you carry your baby to term and give it every chance to share its love with you. It probably won't be easy, but it will be worth the effort. Even with all of her complications, Regan had a good quality of life while she did live. My husband and I took care of her in the hospital and we did everything medically possible to make her comfortable. And, most important to me, she died in our arms knowing that she was loved. Aimee in Cincinnati, Ohio (USA) (mother to Rachel (full T-18) 4/18/01, Jillian Yun Ping 6/18/02, Ian 7/31/03, and Regan (full T-18) 2/9/06-2/11/06 ^i^) http://users.adelphia.net/~meierlaw -----Original Message----- From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On Behalf Of salleh rohaizah Sent: Wednesday, March 28, 2007 10:18 PM To: Tri-Med@xxxxxxxxxxxxx Subject: [tri-med] please help me to decide (edward's syndrome) Hi, I am a new member to this group. I am from Malaysia. I am 19 weeks pregnant and I was told by my doctor 2 days ago that my baby is having edwards syndrome. The doctor told me that the chance for the baby to survive is very minimal. She asked me whether I want to continue the pregnancy or just terminate the pregnancy. I am so confuse right now! I might feel guilty if i terminate the pregnancy as i can feel the baby moving in my tummy ; i already feel the bond between me and the baby and of course I love him so much! But at the same time i also don't want the baby to suffer after his birth. I know some of u might have baby with the syndrome. may I know how is it dealing with this baby during their birth ... does it mean that my baby will have to be in the hospital for the rest of his life? How do u feel to see your baby suffer with many complications? ... please share with me your experience as it might help me to make my decision. The doctor gives me 1-2 weeks to make up my mind. I really need your response and advise. Thank u very much. Rohaizah Salleh ____________________________________________________________________________ ________ Need Mail bonding? Go to the Yahoo! Mail Q&A for great tips from Yahoo! Answers users. http://answers.yahoo.com/dir/?link=list&sid=396546091 Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line