[tri-med] Re: orthodontics
- From: ghulce@xxxxxxxxxx
- To: tri-med@xxxxxxxxxxxxx
- Date: Tue, 24 Apr 2007 03:17:46 -0000
i know how you feel we do favor taylor over my other childern
becauses we do'nt know how much time we will have with him=2E my
parents do the same, taylor does no wrong in my dads eyes, i do'nt
know if it because he does'nt have a dad anymore or my dad will not
be here to see him grow up=2E my parents are'nt in the best of health
either=2E i make much my other childern do get mom time to=2E but the
first year i was not home much in the hosp to much with taylor=2E gina
son taylor triosmy 8 mosaic
---- Original Message ----
From: Dncingqwn@aol=2Ecom
To: tri-med@freelists=2Eorg
Subject: [tri-med] Re: orthodontics
Date: Mon, 23 Apr 2007 22:57:59 EDT
>
>=20
>kaiya's grandma goes through these types of issues for two reasons i=20
>
>believe=2E she favors kaiya 1) because she is the daughter of her only
>biological =20
>daughter (lots of half and steps in my family) and 2) she favors her
>because she =20
>is "different"=2E and you can probably add on that kaiya is favored
>because she =20
>lives with her grandma too=2E=2E=2E my mom used to feel guilty for spoil=
ing
>kaiya=20
>but the whole family does it because we just don't know how much
>time that=20
>we'll have=2E=20
>=20
>kelly - mom to akaiya T18, 4 yrs old
>=20
>p=2Es=2E if asked, my mother would never admit that she favors kaiya
>because she=20
>is the daugher of her biological daughter=2E=2E=2E=2E
>=20
>=20
>In a message dated 4/23/2007 9:35:24 AM Central Daylight Time, =20
>saatsmom@hotmail=2Ecom writes:
>
>Michelle (Alex's mom),=20
>
>I'm just curious if Alex is aware that he's "different" (for lack of
>better
>term)=3F I worry about Julian feeling that all the time=2E And I am
>curious from
>all others on this list about this: I am only the grandma to
>Julian(mosaic
>partial trisomy 1) I have 2 other grandchildren that are not
>affected by
>trisomies=2E I had a huge fight with my son in law and one thing came
>out is
>that I favor Julian over their other child=2E (Julian is not the son
>in laws
>biological child) I accused the son in law of favoring his
>biological
>daughter=2E It was a nasty nasty fight but we both apologized later=2E =
=20
>Sooo, I
>believe I don't love Julian any more than the other grandchildren
>but I do
>feel a need to protect him=2E I admit I do spend more time with him
>but I
>thought it was because the others are babies=2E I loved being a
>grandma but
>nowI feel it's a job and I have to make sure everything is
>absolutely equal
>and believe it or not, thats difficult to do=2E How do you do that
>when he
>requires more time=3F=3F=3F I'm so sad about it=2E Does anyone else go =
thru
>this
>andfeel the tremendous amount of guilt I feel=3F Help!! =20
>
>Karen,( grandma to Julian,3 1/2 yrs old, mosaic partial trisomy 1)=2E=20=
>grandma
>to Lucy 1 yr old and Natalie 8 months old =20
>
>
>
>
>---------------------------------------------------------------------
>-------
>From: "jwaite" <jwaite@ameritech=2Enet>
>Reply-To: tri-med@freelists=2Eorg
>To: <tri-med@freelists=2Eorg>
>Subject: [tri-med] Re: orthodontics
>Date: Sat, 21 Apr 2007 08:40:05 -0400
>>
>>----- Original Message -----
>>From: "Karen" <karens@optushome=2Ecom=2Eau>
>>>People react to what they see, especially first impressions=2E Often
>its not
>>>even conscious=2E I think that its this that makes it important for
>them to
>>>have nice teeth=2E
>>
>>So true=2E=2E=2E=2E=2Eunfair but that's the way it is!
>>
>>We've just noticed that Alex's hair is thining on top=2E Like he
>needs THAT
>to
>>make him even more 'different' compared to his peers, on top of all
>the
>>other issues=2E
>>
>>>As for not being able to take care of their teeth well enough with
>>>braces - >phooey=2E Anyone who has typical kids of teen and pre teen
> age
>>>will tell you
>>>its almost impossible to make sure they brush and brush properly,
>with or
>>> > without braces=2E
>>
>>With both Alex AND Molly, I was known to ocassionally corner them
>in the
>>bathroom (yes, as early teens!) and I would brush their teeth=2E
>Molly did a
>>better job than Alex so he got it more often=2E
>> I didn't care how much they fussed, protested or tried to avoid
>me, I
>would
>>give 'em a good brushing=2E
>>"Mom, I 'm old enough to brush my own teeth" was the common
>refrain=2E
>>Do and good job and I'm outta here was my reply=2E
>>
>>Alex tattled on me to the orthodontist=2E Her reply=3F Good for your
>Mom, I
>>brushed MY kids teeth too when they had braces=2E lol
>>Not the support he was looking for=2E
>>
>>For those who don't know, our Alex has a double sharks row of teeth
>and
>they
>>were jumbled and turned=2E Unsightly AND a messed up bite=2E
>>
>>It took 4 YEARS of braces and 2 oral surgeries to get them
>straightend out=2E
>>Now, $8,000 later, I still harp on him to take care of his oral
>hygine!!!!!!
>>
>>Alex's teeth so bad that at the initial consultation the
>orthodontist told
>>us 'I'll be upfront with you, Alex may lose some teeth since we
>have to
>>shift/move them so far'=2E
>>She also told Alex, 'Well Alex, you are going to be one of Dr=2E
>Sue's
>>biggest challenges=2E'
>>
>>When he was finally done the ortho had tears in her eyes and told
>me that
>'I
>>didn't even dream or hope that his teeth would have turned out as
>well as
>>they did=2E I'd have been happy with less than we got!'=2E
>>
>>
>>>BTW Alex wants a new mum, he hates me because I made him clean up
>his room
>>>yesterday=2E Anyone up for the job=3F :-))))) Why do we have to deal
>with the
>>>teen angst as well as the trisomy=3F
>>
>>There are time right now we're dealing with those early teen
>'issues' right
>>now, just that developmental delay playing with us=2E
>>
>>The older Alex gets the more it is apparent that he's NOT
>developmentally
>or
>>emotionally 19 years old=2E It's like the gap is getting wider and
>it's
>really
>>making it harder to deal with where we are in our lives as a high
>>functioning teen trier and parents=2E
>>
>>Michelle mom to Alex (19, partial trisomy 14 mosaic) and Molly (16)
>>MichiganUSA
>>
>>
>> Building =5F=5F=5FooOOoo=5F=5F Rainbows
>> www=2Etrisomyonline=2Eorg
>> Families Helping Families On-line
>>
>
>
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