[tri-med] Re: ortho visit

Our little Elanor has a 30 degree scoliosis, and has to wear a brace,
too.  She pretty much hates the thing!  She is supposed to wear it for
23 hours a day, but we usually give her a few hour break in the
evenings.  Otherwise she would be absolutely miserable all of the time!
The funny thing about her wearing it at night is that if she has it on,
it keeps her from "stimming" (she likes to roll on her tummy and rock
back and forth), and she goes to sleep almost immediately!  When she
does have it off at night (like last night!), she stays up rocking until
the wee hours!  So nighttime might not be too bad for you once Rebecca
gets used to it?!

Jennifer, mom to Elanor-2 1/2, full T18; and Arwen-5 1/2
Boise, Idaho USA


-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx]
On Behalf Of Glenn Hardy
Sent: Friday, July 25, 2003 10:19 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] ortho visit

We went to see the orthopaedic surgeon yesterday, Rebecca's kyposis is
at 46 degrees and her scoliosis is at 25 degrees,  she will now need a
back brace  to be worn while sleeping, hopefully she will tolerate this
ok.  

Don't fight with dragons for you are crunchy and good with ketchup
 
Susan mom to Rebecca t18 m age 12 yrs and Mark ADD/LD age 11yrs wife to
Glenn
Ontario Canada 
 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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