[tri-med] Re: oral sensitivity

Katy,

A lot of disabled kids have oral aversions.  There are a lot of reasons, but
I'd be willing to bet reflux is a key in your case.  I'm not a doctor or
anything, but I do know that reflux has a myriad of symptoms and
complications.  It's amazing how smart babies and little kids can be.  They
figure out that when they eat they are uncomfortable or even in pain, so
they don't eat.  I would take him to a good gastroenterologist or ear nose
and throat doctor and try a swallow study.  It will show reflux, or other
possible problems with digestion.  It may be that his digestive system is
sluggish and when the food doesn't go down quick enough, it will go up!
Problems swallowing might also be an issue.  A swallow study would show if
he is swallowing air with his food, which would cause all sorts of problems.

Hope you can get to the bottom of this!


Jennifer Vanderbeek
Meridian, ID
Mom to Arwen, 10; Elanor (T18), 8; caregiver to Joe (CP), 29, and wife to
Andrew

Visity Elanor's Caringbridge site at:

http://www.caringbridge.org/visit/elanoranne 



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Katy Roberts
Sent: Thursday, May 29, 2008 10:20 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] oral sensitivity

Hi Everyone,

My son's has oral sensitivity and gags sometimes on food when it has been
mashed. He was born 3 months prem and was very poorly so we did spend 6
months in hospital with him when he was born. He is nearly 4 now and is
doing well, he has a few issues like sight problems, very delayed speech,
not walking etc, etc but considering his start he is well. Something that is
bugging me at the moment though is his eating and gagging. I read somewhere
the other day that in a study of prem kids that had spent alot of time
interbated or with a nasal gastric tube they had big oral sensitivity. Do
any of your kids have this issue? Everytime he seems to be making leaps
forward with moving onto lumpier consistencies he then leaps back again
after a few weeks and we are back to mashing or pureeing. He also has alot
of what we call 'ups and downs', he had horrendous reflux for the first
couple of years but it gradually got better but I think it is still there -
my husband
 thinks its 'just wind' but this just wind makes him sick sometimes or he
has difficulty getting the burp up - he does get alot of burpy wind - why? I
am not sure. I have notied of late that he gulps his drinks so I only give
him small amounts know and he asks (signs) for lots of drinks during meals
almost like he is washing his food down. The speech therapist is driving me
insane with his speech and feeding therapy -  the other day I nearly broke
down and asked here was there something else she would bedoing if my son was
her child she said that we as parents were doing everything!!!!
Any suggestions / tips greatly accepted as I am ripping my hair out!

Katy son t8 mosaic.


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