[tri-med] Re: opthamologist/Jennifer

Yes, they had to go in on both sides.  She has 2 incision sites on each
side, the ones at her pelvis are about 3 inches long, and the ones at the
top by her shoulder blades are about 4 inches.  I'm not sure where they will
go in to lengthen the devices in April.  They try to use the same incision
sites to reduce the number of scars, but the expansion points are not near
the original incisions.  Poor little girl is riddled with scars on her back,
but at least it is straighter!  We are fortunate in that Elanor heals
extremely well (and quickly!) and isn't prone to keloids.

That is great about Brianna's gold medal!  Special Olympics is so awesome!
I bet she was thrilled!  It must be nice to see her get back to life and
accomplish things like that!

Happy New Year!


Jennifer Vanderbeek
Boise, Idaho
Mom to Arwen, 9; Elanor, 7 (T18); caregiver to Joe, 29 (Cerebral Palsy), and
wife to Andrew

I'd like to be OCD, but I just don't have the time...

Check out Elanor's CaringBridge site at:
http://www.caringbridge.org/visit/elanoranne



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of TRIER9@xxxxxxx
Sent: Sunday, December 23, 2007 10:20 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: opthamologist/Jennifer

 
In a message dated 12/21/2007 3:38:20 P.M. Pacific Standard Time,  
Phil46@xxxxxxxxxxxx writes:
VEPTR is  "Vertical Expandable Prosthetic Titanium Rib".  It involves
putting


Wow Jennifer...that is amazing stuff! Thanks for sharing. How long was  
Elanor's incision? Is it on both sides?
 
Brianna(t9p, age 18) has healed well. She does have a rather large scar  
though. She is keloid-prone. Shriners is watching it and has already done
some 
steroid injections on other scars. She was able to participate in  Special 
Olympics bowling already...with a 6lb ball!! And she won a GOLD!
 
Happy Holidays!!
 
Laurie



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                       www.trisomyonline.org
                  Families Helping Families On-line

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