[tri-med] Re: older triers/Joanna?

Chris,

Can you give us an update on Joanna? I haven't heard anything about 
how she's going for a long time.

At 04:45 PM 10/08/2007, you wrote:

> >>>>>>>  I just found out that my daughter's fundo has partially loosen up
>and we are waiting for her surgeon to tell us if we are going to need
>another surgery to fix that. We have been waiting for 3 days and still no
>answer. I hate the fact that we are probably going to have to put her
>through another surgery but she does have severe reflux.>>>>>>>>
>
>
>When Rebecca started vomiting again they did not want to re do the fundo
>even though she basically had a hiatus hernia as they said there was more
>risk with re doing the fundo they wanted to do a J tube ( I did not want
>this) because it means 24/7 feeding basically     so we increased her meds
>and changed her formula which worked
>
>
>
>
>Susan mom to Rebecca t18m 06/06/91 - 05/02/06 and Mark age 15 ADD/LD
>
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>
>--
>No virus found in this incoming message.
>Checked by AVG Free Edition.
>Version: 7.5.476 / Virus Database: 269.11.10/943 - Release Date: 
>8/08/2007 5:38 PM

Jocelyn, Wife to Frank, Mother to Ian, Gillian & Susan. Maker of 
quilts, singer of songs,
Nanna to Carly 20, Mathew 18, Ashleigh 17, Alex 15, and Tess 10 years 
old with T18.
also step Nanna to Carrie age 19. & Great Grandmother to Eli, Jonas & Escha.
Living in NSW, Australia 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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