[tri-med] Re: ohio area help

JUDE, I WILL EMAIL HER AS I AM NOT TOO FAR FROM AKRON, MAYBE
A HALF HOUR AWAY.

DENNETTE, MOM TO DYLAN T18, 6YRS OLD


>From: "Jude Wolpert" <jfwolpert@xxxxxxxxxxx>
>Reply-To: tri-med@xxxxxxxxxxxxx
>To: "tri-med-freelists" <tri-med@xxxxxxxxxxxxx>,"Tri-Family" 
><Tri-Family@xxxxxxxxxxxxx>
>Subject: [tri-med] ohio area help
>Date: Tue, 25 Jun 2002 10:25:19 -0700
>
>
>do we have anyone that could call or email this woman?
>thanks
>jude, mom to derek-16, kelsey-14 and kameron-5-full t18
>golden, colorado, usa
>chromosome 18 registry & research society trisomy syndrome coordinator
>http://chromosome18.org/stories_trisomy.htm#Wolpert
>http://www.trisomyonline.org/wolpert.htm
>
>From: ZDINAKST@xxxxxxx
>To: Office@xxxxxxxxxxxxxxxx
>Sent: Tuesday, June 25, 2002 7:10 AM
>Subject: Is there anyone in the Akron Ohio area?
>
>
>    My best friends son just had a baby at Saint Elizabeths in Youngstown 
>Ohio.  They are waiting for results.  From what the doctors have told them 
>Gracie has some form of Chromosome 18 disorder.  She is on a respirator 
>because of a severe heart defect.  None of them have left the hospital for 
>the last 2 days, they have been told the prognosis is not good.  I found 
>your sight and found such hope I was hoping SOMEONE could talk to them.  
>She is just beautiful and weighed 8#  7 oz. We are all just clueless as 
>what to expect.     ANY contact would help!!
>             Sincerely, Therese Zdinak
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line




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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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