[tri-med] ohio area help

do we have anyone that could call or email this woman?
thanks
jude, mom to derek-16, kelsey-14 and kameron-5-full t18
golden, colorado, usa
chromosome 18 registry & research society trisomy syndrome coordinator
http://chromosome18.org/stories_trisomy.htm#Wolpert
http://www.trisomyonline.org/wolpert.htm

From: ZDINAKST@xxxxxxx 
To: Office@xxxxxxxxxxxxxxxx 
Sent: Tuesday, June 25, 2002 7:10 AM
Subject: Is there anyone in the Akron Ohio area?


   My best friends son just had a baby at Saint Elizabeths in Youngstown Ohio.  
They are waiting for results.  From what the doctors have told them Gracie has 
some form of Chromosome 18 disorder.  She is on a respirator because of a 
severe heart defect.  None of them have left the hospital for the last 2 days, 
they have been told the prognosis is not good.  I found your sight and found 
such hope I was hoping SOMEONE could talk to them.  She is just beautiful and 
weighed 8#  7 oz. We are all just clueless as what to expect.     ANY contact 
would help!! 
            Sincerely, Therese Zdinak 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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