[tri-med] Re: (no subject)-Denise - Michelle Wilson

Michelle, I just want to compliment you on your wonderful, compassionate 
response to Denise.  In my opinion, you have so nailed it on the head.  I often 
read about your struggles, but usually don't chime in.  Since Anna died after 
only 3 months, I don't feel I'm qualified to speak about the difficulties of 
raising a special needs child.  I can only imagine.  I've often said that while 
it is extremely difficult to lose a child, I have such admiration for those of 
you who love, battle with and for our children on a long-term, daily basis.  
Yet, here you are, taking time to help others in need, and with such a 
wonderful response.  I may have more years under (and over!) my belt, but you 
certainly win in the wisdom department. 

Denise, my doctors were also very pessimistic about Anna after we received her 
T-18 diagnosis via amnio.  I was able to find a wonderful doctor through a 
local Right-to-Life office.  I am not familiar with Northern Ireland, so don't 
know if there is any similar organization for you there.  It does sound like 
you have been doing some investigating already.  I'm sorry, I have no ideas for 
you on the medical issues your child faces. 

Take care.
Ceci, mom to angel Anna, T-18
Date: Tue, 19 May 2009 05:09:07 -0700 (PDT) 
From: Michelle Wilson <mewildflower1@xxxxxxxxx> 
Subject: [tri-med] Re: (no subject)-Denise 
 
 
 
 
Hi Denise, I have read the responses so far by the other members of the list 
and 
they are of course on par with their compassion and their wisdom, which has 
come 
with experience.  This experience, for some, will be similar to your situation. 
 
These parents were told there was no hope.  No chance for life.  Some drs may 
even feel they are best suited to tell us what "quality of life" is and that 
"our kids" won't have it.  I hope that after reading the responses from this 
list, which you will surely see that the stories vary in many ways, but that 
they are the same in one very integral way, our kids are very much loved by 
their families.  With that love, you will find the strength to find the best 
plan for your child.  We of course are not doctors and cannot necessarily help 
to make medical decisions, but we can give you what your drs have not...that is 
hope.  We can support you emotionally on this journey.  We can even help you 
look up the resources in 
 your area that will help to lead to the best decisions that YOU can make for 
your child...not the drs.  YOU are that child's mother and don't let drs with 
limited understanding of "our kids" take that role away from you. Gather up 
your 
strength...you are going to need it....and we will be here to help you along 
the 
way.  
 
Michelle Wilson, mother to Faren, trisomy 18 and almost 9 years old! 
 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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