[tri-med] Re: (no subject)-Denise

Good one Denise!!
In fact, the smart ones realize they aren't always right... if you find one
willing to admit that, hold on to them!!

Claire's dr insistes that we blaze the trail together as no one knows what
she is capable of - and her story is not written in a text book, she saw to
that when she showed up for her one week appointment (no surgeries, tubes,
vents, meds, monitors - that is uncommon for a trier anyway).

Debbie, mom to Claire (T18)

On Tue, May 19, 2009 at 8:44 AM, DENISE DEVLIN
<denisedevlin@xxxxxxxxxxxxxx>wrote:

> ...  It is very reassuring to know the doctors are not always right.
>
> Denise
>
>
>
>
> ________________________________
> From: Michelle Wilson <mewildflower1@xxxxxxxxx>
> To: tri-med@xxxxxxxxxxxxx
> Sent: Tuesday, 19 May, 2009 1:09:07 PM
> Subject: [tri-med] Re: (no subject)-Denise
>
>
>
>
> Hi Denise, I have read the responses so far by the other members of the
> list and they are of course on par with their compassion and their wisdom,
> which has come with experience.  This experience, for some, will be similar
> to your situation.  These parents were told there was no hope.  No chance
> for life.  Some drs may even feel they are best suited to tell us what
> "quality of life" is and that "our kids" won't have it.  I hope that after
> reading the responses from this list, which you will surely see that the
> stories vary in many ways, but that they are the same in one very integral
> way, our kids are very much loved by their families.  With that love, you
> will find the strength to find the best plan for your child.  We of course
> are not doctors and cannot necessarily help to make medical decisions, but
> we can give you what your drs have not...that is hope.  We can support you
> emotionally on this journey.  We can even help you look up the
>  resources in
> your area that will help to lead to the best decisions that YOU can make
> for your child...not the drs.  YOU are that child's mother and don't let drs
> with limited understanding of "our kids" take that role away from you.
> Gather up your strength...you are going to need it....and we will be here to
> help you along the way.
>
> Michelle Wilson, mother to Faren, trisomy 18 and almost 9 years old!
>
>
>
>                   Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                   Families Helping Families On-line
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


-- 
______________________________________________________________________________________________________
Give a man a fish and you feed him for a day. Teach a man to fish and you
feed him for a lifetime.    -Chinese Proverb


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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