[tri-med] Re: (no subject)-Denise



Hi Denise, I have read the responses so far by the other members of the list 
and they are of course on par with their compassion and their wisdom, which has 
come with experience.  This experience, for some, will be similar to your 
situation.  These parents were told there was no hope.  No chance for life.  
Some drs may even feel they are best suited to tell us what "quality of life" 
is and that "our kids" won't have it.  I hope that after reading the responses 
from this list, which you will surely see that the stories vary in many ways, 
but that they are the same in one very integral way, our kids are very much 
loved by their families.  With that love, you will find the strength to find 
the best plan for your child.  We of course are not doctors and cannot 
necessarily help to make medical decisions, but we can give you what your drs 
have not...that is hope.  We can support you emotionally on this journey.  We 
can even help you look up the resources in
 your area that will help to lead to the best decisions that YOU can make for 
your child...not the drs.  YOU are that child's mother and don't let drs with 
limited understanding of "our kids" take that role away from you. Gather up 
your strength...you are going to need it....and we will be here to help you 
along the way.  

Michelle Wilson, mother to Faren, trisomy 18 and almost 9 years old!


      
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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