[tri-med] Re: (no subject)

----- Original Message ----- 
From: "LANCE Turner" <turnerlaal@xxxxxxxxxxxxx>
> We have a beautiful 2 month old trisomy 18 daughter, Faith. She was born 
> on April 20, 2009. We never thought we would bring her home let alone have 
> her this long.

Hi and welcome Anna!

We don't have any personal experience with the heart surgery issue as Alex's 
only heart problem is benign branch pulmonary stenosis. The only thing we 
have to do is pre-medicate with antibiotics prior to dental work.

It sounds as if Faith isn't listening to her doctors. ;-)  Good for her!
And yep, if they aren't being proactive it's time to find some who are.
If you tell us where you are located some folks here may have dr or hospital 
names that they've had experience with.

It can be a long and winding road (stealing song lyrics here) but the path 
is a little less difficult when shared with those who understand and support 
you.

Ask questions to your hearts content, somebody here will have a thought, 
experience or suggestion for you.
Also, even though many different trisomy 'flavors' are represented on these 
lists almost all the issues that arise run across the board.

Keep hanging in there and I look foreword to hearing more about Faith.
Michelle mom to Alex (22, partial trisomy 14 mosaic) and Molly (18)
MichiganUSA 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: