[tri-med] Re: (no subject)

Annette
Thank you for your reply and the information, I will see my doctor again soon 
and talk to him about this. It is great to again hear something positive. 

Denise 




________________________________
From: Annette Oseguera <tri18412@xxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Tuesday, 19 May, 2009 1:42:47 PM
Subject: [tri-med] Re: (no subject)

Hi Denise,
Sorry but I don't know what a diaphragmatic hernia is but I do know what 
trisomy 18 is.  I think Annette is the only kid on this list who is vent 
dependent.  Even so, she still gets around and does a lot of things.  In the 
past, I have talked with her pulmonologist and she said that she is willing to 
speak to other doctors who want information on treating and caring for kids 
with trisomy 18.  Her name is doctor Marianna Sockrider.  She is at Texas 
Children's Hospital.  They have a website and her contact information is on 
there.  If the doctors are willing, maybe they can contact her.  She has many 
years as a pulmonologist and many years caring for Annette.  And yes, she cares 
for her, not just treats her.

Annette



--- On Tue, 5/19/09, DENISE DEVLIN <denisedevlin@xxxxxxxxxxxxxx> wrote:

From: DENISE DEVLIN <denisedevlin@xxxxxxxxxxxxxx>
Subject: (no subject)
To: Tri-Med@xxxxxxxxxxxxx
Date: Tuesday, May 19, 2009, 4:09 AM

My unborn son has been diagnosed with trisomy 18 and a congenital diaphragmatic 
hernia and I have been told nothing can be done, he will not be incubated to 
keep him alive and there is no hope. I can find no details of similar cases and 
wondered if anyone could give me any information. 
Many Thanks
Denise 
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line




      
                  Building ___ooOOoo__ Rainbows
                      www.trisomyonline.org
                  Families Helping Families On-line
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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