[tri-med] Re: new drug study

Yes this transient thing is very disconcerting. 90% of the time, he's 
great, can discuss the events of the day, but now and then he seems 
to like you say "somebody else", and this is what is distressing. 
Frank has always been a "teaser", and at times I have to stop, and 
think "are you kidding me", but then it is sad when you realise he's 
not kidding at all. I can understand your Mum being driven nuts, I 
sometimes feel that way myself.

In a discussion with the geriantologist, he did say, that asking the 
same question over and over again, was sometimes a "habit." I had 
said that I thought Frank just got straight in and asked me, "have 
you seen my a) b) etc, I've lost my slippers, or tell me what she 
said again", or why are we going to see this doctor; because he knows 
I can usually come up with the answer like "snap" right away, and it 
saves him from trying. The doc told Frank, "you have to try harder, 
try to think it through, you might remember, it's good exercise for 
the brain". I was slightly mollified by this, as at least it wasn't 
only up to me to change and cope with it all. (sigh). But yes, I know 
what your Mum is going through.

AM 22/08/2007, you wrote:

>----- Original Message -----
>From: "Jocelyn" <jknowd@xxxxxxxxxx>
> >> However on our last holiday to our daughter in Queensland, Frank
> > exhibited a couple of very worrying "confusion" behaviors. eg
> > couldn't find the toilet, and couldn't remember where our clothes
> > were hanging and went looking in our grand daughter's wardrobe
> > upstairs. When I found him and asked "what are you looking for?" he
> > said I'm looking for what shirt I'm wearing today". I said well you
> > won't find it in there, he said where are they then. We always hang
> > our clothes in a makeshift closet under the stairs when we stay with
> > Susie, and he had actually helped me unpack and hang things there, a
> > couple of nights before.  Later when discussing this incident, he has
> > no memory of any of it.
>
>{{{{{Jocelyn}}}}}}
>
>My Dad is doing some of the same things.......and driving my Mom nuts. It's
>so weird. Some days he's really on top of things and others it's like he's
>somebody else.
>Plus, he's got other weird things happening (sudden weight loss, unsteady
>gait, excessive bruising, loss of muscle/strength, wacky white cell
>counts...and nobody can figure out why. VERY frustrating.
>
>Michelle mom to Alex (20, partial trisomy 14 mosaic) and Molly (16)
>MIchigan USA
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>
>--
>No virus found in this incoming message.
>Checked by AVG Free Edition.
>Version: 7.5.484 / Virus Database: 269.12.1/965 - Release Date: 
>21/08/2007 4:02 PM

Jocelyn, Wife to Frank, Mother to Ian, Gillian & Susan. Maker of 
quilts, singer of songs,
Nanna to Carly 20, Mathew 18, Ashleigh 17, Alex 15, and Tess 10 years 
old with T18.
also step Nanna to Carrie age 19. & Great Grandmother to Eli, Jonas & Escha.
Living in NSW, Australia 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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