[tri-med] Re: need help for someone new to trisomy 18

> we knew at 23 weeks.  they tried to get us to terminate but we didnt.  i
> did
> not set up a nursery as i was worried about coming home to one without a
> baby.  they told us if she was born that she would not live to come home.
> it was kind of fun running out to buy a bassinet and car seat to bring kam
> home in when they were wrong.  kam was in the hospital 3 days in with the
> preemies and then she came home with hospice to help us.

Katie,
Our situation is so similar to Kam's. We also knew at about 18 weeks and
they encouraged us to terminate. We also were out finding items for Matthew
at the last minute. Matthew came home with us after 3 nights in the hospital
and was initially on hospice. It wasn't long until he was off to his
pediatrician for well baby check ups. Let me know if I can be of help in any
way. If you need someone to talk with on the phone, feel free to e-mail me
offline for my phone number.

Ruth, wife to Rudy, mom to Brendon (19), Scott (16), Joshua (13), Matthew
Rudy
(Full T18, born 09/13/01, and Rudy Matthew (born 08/13/04)
http://members.cox.net/t18mom

Lord as I face each new day, grant me power, perseverance, patience and
peace.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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