[tri-med] Re: multi focal myoclonic seizures

 
 
Thanks for you kind response! I don't recall any emotional precursors to  the 
myoclonic sz; maybe some excitability. I can definitely agree with feeling  
confused during the episode; it's a crazy feeling to have a group of muscles 
out  my control. I think I could understand feeling angry because of not being 
in  control of the muscle's actions, and because of not knowing what's going 
on. An  example of what can trigger my myoclonic seizures is the flashing 
lights 
that  accompany fire alarms.
Before my grande mal's, I have a lot of auras (thankfully!): the 'smell' of  
wood smoke and laughing gas (very disconcerting!), halo's around lights. Right 
 before the sz, I get really excitable and start to hyperventilate.
I have another "tic" that I think is a number of small focal myoclonic  
seizures: I can be doing anything, including walking, and stay totally 
concious;  I 
liken it to a CD skipping; it feels like my body is skipping a beat, and they 
 come in fours usually. Anyway, my neurologist looks at me like I've gone  
psychotic when I tell him about them, so who knows!  
: ) Annee 



Oh,  how the little things
Strengthen my tiny wings,
Help me to take on the  world,
When you love me,
There's nothing I wouldn't try,
I might even  fly.
-Sarah Groves, All Right Here 
actually  your input is ideal as you can tell me what it FEELS LIKE. Bec
seems  confused, angry, and it looks like, well, if she was speaking she
seems to  keep repeating until 'whatever is happening' is done. But the big
thing is  what does it feel like.

Catherine, mom of Becky (32yrs. Trisomy 13  Mosaic)







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