[tri-med] Re: multi focal myoclonic seizures

actually your input is ideal as you can tell me what it FEELS LIKE. Bec
seems confused, angry, and it looks like, well, if she was speaking she
seems to keep repeating until 'whatever is happening' is done. But the big
thing is what does it feel like.

Catherine, mom of Becky (32yrs. Trisomy 13 Mosaic)

-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx
[mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Annee122884@xxxxxxx
Sent: Wednesday, August 22, 2007 7:13 PM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: multi focal myoclonic seizures




I don't know if it applies b/c I'm not a tri-er, but I have focal myoclonic
seizures (actually, I'm not sure if they're multifocal or monofocal). They
involve the muscles on the left side of my face, and are usually triggered
by
flashing lights; I'm totally concious during them. I've been on Lamictal
(25mg
am, 75mg pm) for two years, and haven't had any of my seizures (grand mal
and
 myoclonic; altho I've still had auras).
Don't know if this will help :)
: ) Annee




Oh,  how the little things
Strengthen my tiny wings,
Help me to take on the  world,
When you love me,
There's nothing I wouldn't try,
I might even  fly.
-Sarah Groves, All Right Here
My Becky  is apparently having multifocal myoclonic seizures. So I'm
wondering if  there are any other children affected and what sort of
medication is and  isn't working?

Catherine, mom of Becky (32yrs. Trisomy  13Mosaic)







************************************** Get a sneak peek of the all-new AOL
at
http://discover.aol.com/memed/aolcom30tour


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.484 / Virus Database: 269.12.4/969 - Release Date: 8/23/07 4:04
PM

No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.5.484 / Virus Database: 269.12.4/969 - Release Date: 8/23/07 4:04
PM

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: