[tri-med] Re: microchephaly- holly



> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: microchephaly- holly
> Date: Sun, 21 Sep 2008 13:27:34 -0400
> From: shamond73@xxxxxxx
> 
> how old was morgan when his seizures began? Jason has not had any yet, and he 
> is 15 months old. Jasons head too seems proportionate to his small body, but 
> when you hold him close and really look, you see just how tiny his head is. 
> its really his face that is just so tiny too. 
> What do the dr's tell you about microcephaly? is there a life span limit due 
> to this? My neurologist tells me nothing. 
> 
> Did Morgans head stop growing at times just like jasons has, or did it just 
> grow very slowly but did continuosly grow?


Sharon,

Morgan started having seizures when he was 6 yrs. old.  The drs don't really 
say much about microcephaly, Morgan's head continues to grow it is just small, 
but it has always been small.  I have never been told that it will affect his 
lifespan anymore than anything else related to t18.  I am of the opinion it is 
nothing to worry about.  


?You have no right to argue with your Creator. You are
merely a clay pot shaped by a potter. 
The clay doesn?t ask, ?Why did 
you make me this way??? (Isaiah 45:9 CEV).



Holly ( Des Moines, IA) -- wife of Mike 
mom of Morgan (11 yrs. old) unbalanced translocation resulting in partial t18q 
and partial monosomy 9p 
dx'd with type 1 diabetes 03-17-08, enjoying the honeymoon--injecting levemir 
twice daily,novolog



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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