[tri-med] Re: microchephaly

my baby Jason who has T17p mosaic has microchephaly. He has always had a tiny 
face and small head. But the last 2 times we have gone to the GI he has gained 
weight and grown in height, but his head has not grown.?Until this, it has 
always grown at each appt. Each appt is 5weeks apart, so for the last 10 weeks 
there has been no growth.

i was wondering if anyone knows what this means? Does anyone else's child have 
microchephaly due their chromosome abnormality? Could his face and head always 
stay this small? is this really bad ? 

Sharon
mom to Jason T17p (15months) and Lauren (3 years old)?





-----Original Message-----
From: shamond73@xxxxxxx
To: tri-med@xxxxxxxxxxxxx
Sent: Sat, 20 Sep 2008 11:14 pm
Subject: [tri-med] Re: Full Trisomy 17 baby Michael has passed away



Theresa,
i am so sorry to hear this news that Michael has passed away so soon. My 
thoughts and prayers are with you and your family. May g-d give you strength to 
get through this difficult time. We are all here for you as well, please write 
whenever you need.

Sharon
mom to Jason T17p (15 months), and Lauren (3 years old)


-----Original Message-----
From: Mary Capp <mrcapp@xxxxxxxxxxxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Sat, 20 Sep 2008 9:57 pm
Subject: [tri-med] Re: Full Trisomy 17 baby Michael has passed away



Theresa, I know God has taken Michael into His Kingdom,  and he is now
perfect.  I know my son is showing him around heaven, along with all
the other Trisomy angels.  If you want I will add him to the Angel
days list.

Mary Capp mom to Michael ^i^ Richard W., Hannah and wife to Richard E.

On Fri, Sep 19, 2008 at 7:37 AM, Lace4Blitz <Lace4Blitz@xxxxxxxxxxx> wrote:
> As some of you may remember I was pregnant with a Full Trisomy 17 baby. He
> was born on 9-9-08 on his fathers birthday. He suffered many problems on his
> short life on this earth. As some of you may remember he had a very bad
> heart diagnosed prenataly. In addition he had a misplaced kidney and a dandy
> walker. He also suffered a fractured clavacle, club foot, missing right
> middle finger,  and his whole right side of his body was slightly shorter
> then his left side.
>
> Sadley enough Michael passed away last night at the hospital. I held him in
> my arms as he passed. He passed very peacefully. Michael touched so many
> peoples lives on his short time here on this earth. He had doctors baffled
> and nurses crying. So many hospital staff came to see him on his last day as
> the doctors had told us the time had come that he was passing. He left this
> world with his whole family beside him. He is so loved by everyone who met
> him.
>
> I have attached his picture along in this email so you could all see the
> most presious baby life could have given us all.
>
> I ask that you pray GOD accepts Michael into his kingdom so he cou
ld be
> whole again and live out his life in a better place.
>
> For those of you that lost a child, my hearts go out to you as I feel your
> pain which right now is so incredibaly hard and I dont understand why he had
> to leave this world so soon.
>
> The doctors told us he would die in utero so I try to look at it as 9 days
> with Michael has been better then no days with Michael. He will forever live
> in our hearts.
>
> I am so sad that my baby has left this world and he never even got to see
> the things we take for 
granited everyday like seeing the outside of a
> hospital.
>
> Please pray for my son that he goes right into heaven.
>
> Thank you
>
> Theresa
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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