[tri-med] Re: microcephalia

Jude,
How were you able to determine the proportion of Kam's head circumference to
her body size?  Any time I have mentioned this to a doc. they act like I am
crazy.
Thanks
Nicole mom to Alyssa 4 (going on 21, keeping me busy, and keeping my hair
from getting to long because I'm pulling it out), Sierra 2 1/2 (partial
trisomy 18 q, my brightest ray of sunshine on a gloomy day), Kobey 1 (true
mama's boy through and through, climbing, pinching, and loving), and Joe my
wonderful husband of 8 yrs. (without his support I would be in the funny
farm by now!)
----- Original Message -----
From: "Jude Wolpert" <jfwolpert2@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, October 22, 2003 11:29 AM
Subject: [tri-med] Re: microcephalia


> kam's head circumference was always tracked by the ped until she was about
4
> years old.  her soft spot didnt even close until after she was 2 years
old.
> kam's head has always been a bit big (so is her dad's) but it has grown
> constantly and proprtionately once we determined her proportion to body
> size.
> jude, mom to derek-17, kelsey-15
> and kameron-6-full t18
> golden, colorado usa
> http://home.comcast.net/~jfwolpert2
> ----- Original Message -----
> From: "Nicole Jones" <jones@xxxxxxxx>
>
> > I guess my mind is just wondering this morning!  I usually don't ask
this
> many questions, but I am wanting to go to the doc (for the 1st time since
> getting dx) and I am trying to compile some information to talk with her
> about.  Does anyone else on the list deal with microcephalia?  Sierra was
> diagnosed with it when she was very small.  My question is, I have heard
> about a chart that compares the head circumference with the rest of the
> body, has anyone else?  I know that they are charting Sierra on the
> "regular" charts, but it doesn't make sense to compare her head to a
regular
> sized body because she is obviously very little for her age.
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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