[tri-med] Re: loud and messy

Thanks.
That clarifies a lot.  Triers do basically have low tone, so rather then
overactive glands, as I suspected, it sounds more like low tone, which is
known to be common in our kids.  Adding to the low tone is the under used
muscles, it all makes more sense now.
Best wishes that this works out for Nejoud.

Debbie, mom to Claire (T18)

On Thu, May 28, 2009 at 12:56 PM, Mohammed Taha <abuhamzeh@xxxxxxx> wrote:

> Debbie,
> The way the doctor explained it to us is that the jaw mussels are relaxed
> because they are not being used for chewing food (Nejoud is G-tube fed).
> Relaxed mussels is the cause of drooling....Nejoud drools when her hands are
> out or inside her mouth. The only time she does not drool is when she is a
> sleep or when she is sick!!! Go figure...I hope that the botox injections
> will be the answer.....
>
> Mohammed,
>
>
>
> ________________________________
> From: Debbie <debbwebb@xxxxxxxxx>
> To: tri-med@xxxxxxxxxxxxx
> Sent: Thursday, May 28, 2009 9:35:20 AM
> Subject: [tri-med] Re: loud and messy
>
> Claire drools because her hands are in her mouth.  Keeping the hands out of
> her mouth, she doesn't drool.
> If kids are tube fed, they don't need as much saliva anyway?
> Is the drool from a triers an overactive gland?
> That would be something I hadn't heard of... but Claire isn't as old as
> some
> (wow, I guess she is getting up there tho).  I still think I'm 30 too.
> heheheh!
> Where's Jude?
>
> Debbie, mom to Claire (T18 - 6 years old)
>
> On Thu, May 28, 2009 at 9:07 AM, <dncingqwn@xxxxxxx> wrote:
>
> > i have not heard of doing botox injections in the saliva glands...sounds
> > interesting though. i'll have to ask her doc about it. you'll have to let
> us
> > know how it works out for nejoud.
> > kelly - mom to akaiya t18 - 6yrs old
> > http://akaiyajacelyn.blogspot.com
> >
> >
> > -----Original Message-----
> > From: Mohammed Taha <abuhamzeh@xxxxxxx>
> > To: tri-med@xxxxxxxxxxxxx
> >  Sent: Wed, 27 May 2009 9:13 pm
> > Subject: [tri-med] Re: loud and messy
> >
> >
> >
> >
>  > We have an?appointment with Nejoud's doctor to do what is called botox
> > injections in the saliva glans. Many people that tried it say this
> > procedure
> > reduces drooling to 90% in some cases. We look forward to see the
> results.
> > Nejoud is a real drooler. We change bibs 12 times a day if not more. As
> for
> > the
> > noise Nejoud has the same noise making?where she sounds like she is
> trying
> > to
> > talk but bables a lot with her tong sticking out somewhat. We actually
> like
> > it
> > and she seems to enjoy it a lot. It happens when she is feeling really
> > good.
> > Biting her fingers and putting her hands in her mouth is a normal routine
> > for
> > her also. Last time she did bite her finger and?cut it. We start putting
> > socks
> > on it but she even bit her finger throughthe socks. She is doing better
> > lately.
> > By the way if you feed Akaiya formula which I assume that is what she
> eats
> > then
> > 98% of it is water.. Nejoud takes only Neocate Jr by G-tube..Good Luck...
> > ?
> > Mohammed, Nejoud's father, T-18 and 3-yrs old.
> >
> > kelly - mom to akaiya t18 - 6yrs
> > http://akaiyajacelyn.blogspot.com
> >
> >
> > ? ? ? ? ? ? ? ? ? Building ___ooOOoo__ Rainbows
> > ? ? ? ? ? ? ? ? ? ? ? www.trisomyonline.org
> > ? ? ? ? ? ? ? ? ? Families Helping Families On-line
> >
> >
> >
> > ________________________________
> >
> > From: "dncingqwn@xxxxxxx" dncingqwn@xxxxxxx
> > To: tri-med@xxxxxxxxxxxxx
> > Sent: Wednesday, May 27, 2009 8:12:38 PM
> > Subject: [tri-med] loud and messy
> >
> >                  Building ___ooOOoo__ Rainbows
> >                      www.trisomyonline.org
> >                  Families Helping Families On-line
> >
> >
> >
> >                  Building ___ooOOoo__ Rainbows
> >                      www.trisomyonline.org
> >                  Families Helping Families On-line
> >
> >
>
>
> --
>
> ______________________________________________________________________________________________________
> Give a man a fish and you feed him for a day. Teach a man to fish and you
> feed him for a lifetime.    -Chinese Proverb
>
>
>                   Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                   Families Helping Families On-line
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


-- 
______________________________________________________________________________________________________
Give a man a fish and you feed him for a day. Teach a man to fish and you
feed him for a lifetime.    -Chinese Proverb


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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