[tri-med] Re: loud and messy

Debbie,
The way the doctor explained it to us is that the jaw mussels are relaxed 
because they are not being used for chewing food (Nejoud is G-tube fed). 
Relaxed mussels is the cause of drooling....Nejoud drools when her hands are 
out or inside her mouth. The only time she does not drool is when she is a 
sleep or when she is sick!!! Go figure...I hope that the botox injections will 
be the answer..... 

Mohammed,



________________________________
From: Debbie <debbwebb@xxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Thursday, May 28, 2009 9:35:20 AM
Subject: [tri-med] Re: loud and messy

Claire drools because her hands are in her mouth.  Keeping the hands out of
her mouth, she doesn't drool.
If kids are tube fed, they don't need as much saliva anyway?
Is the drool from a triers an overactive gland?
That would be something I hadn't heard of... but Claire isn't as old as some
(wow, I guess she is getting up there tho).  I still think I'm 30 too.
heheheh!
Where's Jude?

Debbie, mom to Claire (T18 - 6 years old)

On Thu, May 28, 2009 at 9:07 AM, <dncingqwn@xxxxxxx> wrote:

> i have not heard of doing botox injections in the saliva glands...sounds
> interesting though. i'll have to ask her doc about it. you'll have to let us
> know how it works out for nejoud.
> kelly - mom to akaiya t18 - 6yrs old
> http://akaiyajacelyn.blogspot.com
>
>
> -----Original Message-----
> From: Mohammed Taha <abuhamzeh@xxxxxxx>
> To: tri-med@xxxxxxxxxxxxx
>  Sent: Wed, 27 May 2009 9:13 pm
> Subject: [tri-med] Re: loud and messy
>
>
>
>
> We have an?appointment with Nejoud's doctor to do what is called botox
> injections in the saliva glans. Many people that tried it say this
> procedure
> reduces drooling to 90% in some cases. We look forward to see the results.
> Nejoud is a real drooler. We change bibs 12 times a day if not more. As for
> the
> noise Nejoud has the same noise making?where she sounds like she is trying
> to
> talk but bables a lot with her tong sticking out somewhat. We actually like
> it
> and she seems to enjoy it a lot. It happens when she is feeling really
> good.
> Biting her fingers and putting her hands in her mouth is a normal routine
> for
> her also. Last time she did bite her finger and?cut it. We start putting
> socks
> on it but she even bit her finger throughthe socks. She is doing better
> lately.
> By the way if you feed Akaiya formula which I assume that is what she eats
> then
> 98% of it is water.. Nejoud takes only Neocate Jr by G-tube..Good Luck...
> ?
> Mohammed, Nejoud's father, T-18 and 3-yrs old.
>
> kelly - mom to akaiya t18 - 6yrs
> http://akaiyajacelyn.blogspot.com
>
>
> ? ? ? ? ? ? ? ? ? Building ___ooOOoo__ Rainbows
> ? ? ? ? ? ? ? ? ? ? ? www.trisomyonline.org
> ? ? ? ? ? ? ? ? ? Families Helping Families On-line
>
>
>
> ________________________________
>
> From: "dncingqwn@xxxxxxx" dncingqwn@xxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Sent: Wednesday, May 27, 2009 8:12:38 PM
> Subject: [tri-med] loud and messy
>
>                  Building ___ooOOoo__ Rainbows
>                      www.trisomyonline.org
>                  Families Helping Families On-line
>
>
>
>                  Building ___ooOOoo__ Rainbows
>                      www.trisomyonline.org
>                  Families Helping Families On-line
>
>


-- 
______________________________________________________________________________________________________
Give a man a fish and you feed him for a day. Teach a man to fish and you
feed him for a lifetime.    -Chinese Proverb


                  Building ___ooOOoo__ Rainbows
                      www.trisomyonline.org
                  Families Helping Families On-line
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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