[tri-med] Re: loud and messy

We have an appointment with Nejoud's doctor to do what is called bottox 
injections in the saliva glans. Many people that tried it say this procedure 
reduces drooling to 90% in some cases. We look forward to see the results. 
Nejoud is a real drooler. We change bibs 12 times a day if not more. As for the 
noise Nejoud has the same noise making where she sounds like she is trying to 
talk but bables a lot with her tong sticking out somewhat. We actually like it 
and she seems to enjoy it a lot. It happens when she is feeling really good. 
Biting her fingers and putting her hands in her mouth is a normal routine for 
her also. Last time she did bite her finger and cut it. We start putting socks 
on it but she even bit her finger throughthe socks. She is doing better lately. 
By the way if you feed Akaiya formula which I assume that is what she eats then 
98% of it is water.. Nejoud takes only Neocate Jr by G-tube..Good Luck...
 
Mohammed, Nejoud's father, T-18 and 3-yrs old.

kelly - mom to akaiya t18 - 6yrs
http://akaiyajacelyn.blogspot.com


                  Building ___ooOOoo__ Rainbows
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________________________________

From: "dncingqwn@xxxxxxx" dncingqwn@xxxxxxx
To: tri-med@xxxxxxxxxxxxx
Sent: Wednesday, May 27, 2009 8:12:38 PM
Subject: [tri-med] loud and messy

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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