i did ell my other children that Taylor dose have a chromosome disorder my
other 2 older children understood but RJ my 3 child did not. and we do not
use the r word in my house. Gina son Taylor trisomy 8 mosaic
-----Original Message-----
From: James Waite <jwaite@xxxxxxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx <tri-med@xxxxxxxxxxxxx>
Date: Wednesday, June 20, 2001 9:36 PM
Subject: [tri-med] Re: looking for ideas/suggestions
>
>
>----- Original Message -----
>From: "Karen Schuler" <karens@xxxxxxxxxxxxxxxx>
>To: <tri-med@xxxxxxxxxxxxx>
>> Actually this is similar to what the genetic counsellor told me. She
>> suggested you tread very softly - because of Alex's age she feels there
>> could (I stress the could) be dangerous consquences if its not handled
>> correctly.
>
>I already had a headache tonight..............
>
>Now I sit here thinking, "Maybe we should have told him earlier" and then a
>slight thought of "Does he REALLY need to know?".
>
>The answer to the first is........I really don't think it was the right
time
>then. The answer to the second is "yes he does".
>
>Sigh. I'm not liking my position in the trisomy funpark right now.
>
>Michelle mom to Alex (14, partial trisomy 14 mosaic) and Molly (10)
>Michigan USA
>
>
>
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
>
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
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