[tri-med] lisa potash

dear lisa
  how are you doing?
  i don't know if you have other children or not but i wanted to share what my 
9 yr old daughter said to me the other day
  "mom" she starts and pauses...
  "Mitchell may not live long outside your body ,Right?"
  "yes honey" i said
  "I want to see him before he takes his last little breath and closes his eyes 
and goes to heaven..."
  sob sob
  "You got it honey, your the best big sister a little boy can have.."
   
  I'm discovering it's not just mine and my husbands journey, but our chidren's 
as well
  from the mouth of babes...
  love jenn
  mother of Mitchell Critz Ayers 23 1/2 weeks
  
lisa potash <lpotash@xxxxxxxxxxx> wrote:
  Hi- We just found out at 17 ½ weeks that our baby is positive after cvs and
amnio for trisomy 13 mosaic. We are at Northwestern which is supposed to be
the best around. The doctors there and genetic counselors/ob?s-pretty much
everyone we have talked to encourages termination. I haven?t found anything
on the web either that is helping to make our decision to proceed. We are
planning to wait the two weeks until the culture grows and have another
ultrasound but are told to expect confirmation only. Our 17 week ultrasound
showed nothing which they tell us means the bad cells are probably internal
which is worse. The mosaic part makes it even harder since they say it masks
the issues and sometimes prolongs them. As of today, I don?t feel it is
fair to try to have this baby born to just have it suffer and pass away so
quickly. I am also afraid what effect that will have on the rest of our
family. They tell us that mental retardation is almost a definite so it
doesn?t sound like the baby would even know it was here. The docs say I may
make it to term since it is mosaic. 
Any advice if you have a trisomy 13-mosaic? I am finding that it does matter
if it is 13 and if it is mosaic. Also, any other doctors/hosp that you
would recommend? I did get a second opinion from Evanston and it was the
same.

Thanks


Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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