[tri-med] Re: life excpectancy

----- Original Message ----- 
From: <SHAMOND73@xxxxxxx>

> Has anyone been able to get any answers on life excpectancy from any of
> their doctors. No one tells me anything, and i am beginning to think it is 
> not
> because they don't know.

Bingo!!!!!!!   NOBODY can answer that question.

The medical professionals can make suppositions/educated guesses based on 
the very small amount of accurate info available to them.

And that doesn't take into account that each of our children is an 
INDIVIDUAL.
No 2 are alike.
No 2 have the exact same issues from head to toes.
Just like the rest of the human population.

Honestly, that's just something that Jim and I have never even spent time 
dwelling on with Alex.
Nothing we could do about it and it would just take away from what we were 
doing with him that was positive.

It's actually kind of weird that I was able to put that particular aspect of 
trisomy life and those worries into a box and keep it out of the light of 
day. hmmmm......

Michelle mom to Alex (21, partial trisomy 14 mosaic) and Molly (18)
MichiganUSA 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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