[tri-med] Re: kind of scary

Our prenatal genetics program is so aggressive, it is hard to believe. 
I have a friend whose daughter has albinism. (albino) She runs and plays like 
other kids but she has to be careful in the sun. 

When the mom was speaking to the geneticist (at the same hospital where Annie 
died) she told her that if she conceived again, they could test for the gene 
and if the next baby had it, they could "gently terminate" the pregnancy. The 
mother was shocked because her 4 yr old was standing there when this was said 
and because she couldn't imagine terminating a pregnancy for such a minor 
problem. She made it very clear that she was NOT interested. 

A year later, the mom became pregnant and when she went for the first 
appointment to her OB a geneticist was sitting there. 

This is the nature of public health. I think it has gone well beyond an 
aversion to disability. People want perfection. As the article states, the 
tests will be sooner and capable of checking everything.

If anyone has ever seen the movie Gattica,it gives you an idea of the future I 
think. (movie is avail on line)

The theme for the movie is perfect, "there is no gene for the human spirit". 

Barb
Annie's mom



> Date: Sat, 25 Oct 2008 11:50:57 +1100
> To: tri-med@xxxxxxxxxxxxx
> From: jknowd@xxxxxxxxxx
> Subject: [tri-med] Re: kind of scary
> 
> Very thought provoking. I think the day may come that society will 
> impose certain testing to "weed out" what they see as problem babys. 
> This is becoming (no I think already is) a VERY SHALLOW society, 
> where we expect everyone to be perfect. I saw on Dr Phil the other 
> day, where a woman said she would not sit near a fat person in a 
> cafe, as it would "grose her out". Beware, beware, what are we 
> getting into. This whole topic fills me with dread.
> 
> At 05:02 AM 25/10/2008, you wrote:
> >http://news.bbc.co.uk/2/hi/health/7688299.stm
> >
> >jude, mom to derek-22, kelsey-20 and kameron-11- full trisomy 18
> >boulder, colorado
> >www.judewolpert.com
> >http://home.comcast.net/~jfwolpert2/wsb/html/view.cgi-photos.html-.html
> >
> >                   Building ___ooOOoo__ Rainbows
> >                        www.trisomyonline.org
> >                   Families Helping Families On-line
> >
> >
> >
> >No virus found in this incoming message.
> >Checked by AVG - http://www.avg.com
> >Version: 8.0.175 / Virus Database: 270.8.2/1740 - Release Date: 
> >22/10/2008 7:24 PM
> 
> Jocelyn,  wife to Frank,  Mother to Ian, Gillian and Susan, Nanna to 
> Carly 21  Mathew 19,  Ashleigh 18, Alex 16,  and Tess  (Trisomy 18,) 
> age 11 yrs,  & Benny the Maltese, plus one amazing DIL and two 
> amusing SIL's of whom I'm very fond, and their extended family who 
> are too many to list here.
>    
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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