[tri-med] Re: kam was super

Hey Jude,

If you figure out how to get Kam to go EVERYDAY let us know.  Cody goes once
or twice every couple of weeks.  And if he goes in between it's tiny little
droppings or just marks on his diaper.  Our GI doctor has told us that he
has very low muscle control and the more we use items to help him go the
worse it will get.  I have had moms tell me it is very bad for him not to go
everyday and I need to do something about it.  Well we have tried many
different ways and nothing works.  Cody is now 12 and for the last four
years I just go with the "flow" so to speak!  It is worse watching him react
when I try to help him everyday and nothing "comes out"
You are a great mom and that doctor should maybe live in your shoes for a
week.  I swear sometimes these people should think before they speak.  What
do they think we just sit around trying to invent ways for our children NOT
to go to the bathroom!?
Good luck and don't ever sell yourself short.  You are a terrific mom and
Kam would be lost without you.

Hugs,
Tracy mom to Cody (Trisomy 9p)


----- Original Message ----- 
From: "Jude Wolpert" <jfwolpert2@xxxxxxxxxxx>
To: "tri-med-freelists" <tri-med@xxxxxxxxxxxxx>
Sent: Friday, February 22, 2008 8:49 PM
Subject: [tri-med] kam was super


> the mri and the rectal biopsy went great.  she took 3 hours in the
recovery
> room instead of the typical 1 hour for typical kiddos...hahaha
> but she was totally impacted and the gi dr put me on the total guilt trip
> about how could i let me daughter get like that....drats.  it was the
total
> pits.
>
> now we have to have the perfect liquid runs for the next 2 weeks, mega
> miralax.  i warned her classroom and they are cool with it.
> how can you be the perfect mom?
> jude, mom to derek-21, kelsey-19
> and kameron-10-full trisomy 18 (hanging out so i will never be an empty
> nester)
> golden, colorado usa
> http://www.judewolpert.com
> http://flickr.com/photos/judewolpert/
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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