[tri-med] Re: kam was super

i have been told surgery but no one has mentioned colostomy!  my momma gut 
is telling me it could be probable as she had he intestinal section for her 
bleed years ago.  a colon section seems a bit of the same.

you young moms all amaze me!  i was already 29 when i had my first, derek. 
i was 40 for kam!!!
oops bill is calling as kam is doing the biz right now!
jude, mom to derek-21, kelsey-19
and kameron-10-full trisomy 18 (hanging out so i will never be an empty 
nester)
golden, colorado usa
http://www.judewolpert.com
http://flickr.com/photos/judewolpert/

----- Original Message ----- 
From: "Karen Schuler" <trisomy@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Monday, February 25, 2008 6:51 PM
Subject: [tri-med] Re: kam was super


> ----- Original Message ----- 
> From: "Jude Wolpert"
>> did your daughter or niece have surgery for the hirschsprungs?
>
> Daughter and sister - yes - both did.
> My sister's (Joanne) was back in the days when it was experimental. The
> surgery (18 surgeries all up) was successful but she did die, exactly what
> of no one is sure but her bowels were working just fine.
>
> My daughter did and it was traumatic for me (my first child, I was 21 and
> all I knew about it was that it killed my sister). In reality it was a
> breeze - she only had a small section effected. Two surgeries with the
> colostomy for only 12 months. I believe that they can actually treat it
> without the surgeries / colostomy sometimes these days.
>
> Life consists not in holding good cards but in playing those you hold 
> well.
>                                            -- Josh Billings
>
> Keep Looking For Rainbows!!
>   _--_|\
> /Karen \
> \ _.--._ /
>          v Karen, Mum to Alex (12 years, T-18 Mosaic)
> http://members.optushome.com.au/karens
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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