[tri-med] Re: kam was super

so this weekend was wonderful with the 2 cap fulls a day!!yeah right.  poor 
bill i had a photo workshop (flash and stobe) i had signed up for before 
they scheduled her day surgery.  the bbsitter called sat am sick with a cold 
so bill was super dad for 6 hours.  funny as he is not the best at diapers 
and she tends to bust a sag with dad.  not good if your bowels are totally 
liquid.  i did lots of laundry this weekend.  and poor guy on sunday we had 
a denver conference planning mtg and the chair is not good about keeping to 
the agenda and that was 3 hours...
we will just have to find a balanace during the meantimes with the miralax. 
did your daughter or niece have surgery for the hirschsprungs?
thanksjude, mom to derek-21, kelsey-19
and kameron-10-full trisomy 18 (hanging out so i will never be an empty 
nester)
golden, colorado usa
http://www.judewolpert.com
http://flickr.com/photos/judewolpert/

----- Original Message ----- 
From: "Karen Schuler" <trisomy@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Monday, February 25, 2008 6:00 PM
Subject: [tri-med] Re: kam was super


> ----- Original Message ----- 
> From: "Jude Wolpert"
>> but she was totally impacted and the gi dr put me on the total guilt trip
>> about how could i let me daughter get like that....drats.  it was the
>> total
>> pits.
>
> Jude don't you dare beat yourself up on that. Remember the reason that you
> went is because she wasn't going!!! The truth is every doctor has a
> different opinion on what regular means. And being regular is no guarantee
> that they are not backing up anyway.
>
> My eldest had Hirschprungs - I took her to the ped when she hadn't gone
> after 10 days - he said that was fine as she was breast fed. I took her to
> another ped after 20 days with no go. He freaked (because her belly was so
> distended) and made an appointment with the GI (he also emptyed her). It
> took a week for the GI appointment.
>
> The GI saw her at 7 days and then 28 days with no motion and he wasn't all
> that worried. He put her on a suppository / stimulant routine but he only
> wanted a motion once a week. Even after the Hirschprungs surgery he only
> wanted 1 or 2 motions a week. My mother however had been told daily with 
> my
> sister (who also had Hirschprungs)
>
> Every GI I have ever seen has a different opinion - some say every day, 
> some
> say 2 -3 days and one even said once a week. Besides going regularly is no
> guarantee that they are not backed up.
>
> Alex has a motion EVERY day sometimes 2 or 3 times but he still gets 
> backed
> up on a regular basis, in fact I think he is backed up all the time. Now
> that he isnt having 6 monthly abdo ultrasounds the only way I can tell 
> that
> the back up is bad is because he gets "overflow". It's so much harder
> managing it for the master these days because I am not allowed to know 
> that
> personal stuff anymore. Heaven help me if he ever learns to clean the 
> toilet
> himself because then I will never know!!!
>
> Life consists not in holding good cards but in playing those you hold 
> well.
>                                            -- Josh Billings
>
> Keep Looking For Rainbows!!
>   _--_|\
> /Karen \
> \ _.--._ /
>          v Karen, Mum to Alex (12 years, T-18 Mosaic)
> http://members.optushome.com.au/karens
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: