[tri-med] Re: kam was super

No he gets impacted about once a year...but in 2007 it never happened once.
I HAVE NO IDEA!!!!  But he is not at all uncomfortable so I am not messing
with him.  Been there done that!!!!!

Tracy mom to Cody (Trisomy 9p)



----- Original Message ----- 
From: "Jude Wolpert" <jfwolpert2@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Saturday, February 23, 2008 11:21 AM
Subject: [tri-med] Re: kam was super


> i was only shooting for at least every third day!  haha
> doesnt cody get all impacted?  where does all his waste go if not out?
> (lovely discussion sorry folks..)
> jude, mom to derek-21, kelsey-19
> and kameron-10-full trisomy 18 (hanging out so i will never be an empty
> nester)
> golden, colorado usa
> http://www.judewolpert.com
> http://flickr.com/photos/judewolpert/
>
> ----- Original Message ----- 
> From: "Verheyen" <verheyen@xxxxxxxxxxx>
> To: <tri-med@xxxxxxxxxxxxx>
> Sent: Saturday, February 23, 2008 5:40 AM
> Subject: [tri-med] Re: kam was super
>
>
> > Hey Jude,
> >
> > If you figure out how to get Kam to go EVERYDAY let us know.  Cody goes
> > once
> > or twice every couple of weeks.  And if he goes in between it's tiny
> > little
> > droppings or just marks on his diaper.  Our GI doctor has told us that
he
> > has very low muscle control and the more we use items to help him go the
> > worse it will get.  I have had moms tell me it is very bad for him not
to
> > go
> > everyday and I need to do something about it.  Well we have tried many
> > different ways and nothing works.  Cody is now 12 and for the last four
> > years I just go with the "flow" so to speak!  It is worse watching him
> > react
> > when I try to help him everyday and nothing "comes out"
> > You are a great mom and that doctor should maybe live in your shoes for
a
> > week.  I swear sometimes these people should think before they speak.
> > What
> > do they think we just sit around trying to invent ways for our children
> > NOT
> > to go to the bathroom!?
> > Good luck and don't ever sell yourself short.  You are a terrific mom
and
> > Kam would be lost without you.
> >
> > Hugs,
> > Tracy mom to Cody (Trisomy 9p)
> >
> >
> > ----- Original Message ----- 
> > From: "Jude Wolpert" <jfwolpert2@xxxxxxxxxxx>
> > To: "tri-med-freelists" <tri-med@xxxxxxxxxxxxx>
> > Sent: Friday, February 22, 2008 8:49 PM
> > Subject: [tri-med] kam was super
> >
> >
> >> the mri and the rectal biopsy went great.  she took 3 hours in the
> > recovery
> >> room instead of the typical 1 hour for typical kiddos...hahaha
> >> but she was totally impacted and the gi dr put me on the total guilt
trip
> >> about how could i let me daughter get like that....drats.  it was the
> > total
> >> pits.
> >>
> >> now we have to have the perfect liquid runs for the next 2 weeks, mega
> >> miralax.  i warned her classroom and they are cool with it.
> >> how can you be the perfect mom?
> >> jude, mom to derek-21, kelsey-19
> >> and kameron-10-full trisomy 18 (hanging out so i will never be an empty
> >> nester)
> >> golden, colorado usa
> >> http://www.judewolpert.com
> >> http://flickr.com/photos/judewolpert/
> >>
> >>                   Building ___ooOOoo__ Rainbows
> >>                        www.trisomyonline.org
> >>                   Families Helping Families On-line
> >>
> >>
> >
> >
> >                  Building ___ooOOoo__ Rainbows
> >                       www.trisomyonline.org
> >                  Families Helping Families On-line
> >
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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