[tri-med] Re: intestinal malrotation

{From these examinations the doctors
found out that she has "Intestinal Malrotation"}

Nicholas had surgery last year for a malrotated bowel and had a fundo also for 
reflux.  He was in the hospital for 4 days.  They gave him an epidural in 
recovery for 3 days.  Boy did that help keep him still.  He did great, but 
after the surgery, he got a hernia.  He was operated on in the fall of this 
year.  We went to the doctor yesterday and he has 2 more hernias.  The doctor 
said he will put different stitches in this time plus maybe a mesh.  He said 
"maybe" because it could get infected. 

I know of 3 other Trisomy 13 children with malrotated bowel surgery.  The 
doctor said anyone could have this, though.  I do know of a 4 week old child 
that died last week because she had this and they didn't know.  That's why they 
need to correct this as soon as possible.

Jayne - mom to Nicholas - T-13 - 7 yrs old
Hudson IL 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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