[tri-med] Re: ideas on dealing with... - Katrina

On Thursday, May 27, 2004, at 08:08  PM, The Ngais wrote:
>  How/Where does one go about getting a dietician? I've mentioned it 
> once to the pedicatrician...all he said was 'go for it'.
>
> I am not sure if the doctors will switch to Pediasure when she's one. 
> What are the advantages/disadvantages?

We connected with a outpatient dietician at our Children's Hospital 
where Keren sees most of her doctors.  We met with her one time and 
were able to go through Keren's records, etc.  I was primarily 
concerned that Keren was getting the right nutrients and enough fluids. 
  Once we got the basics worked out, the dietician left it up to us for 
when we would come in again (I can call anytime).  This was fine by 
me--I was a little afraid of having Keren's diet dictated!

We switched to Pediasure based on the dietitian's recommendation.  
Keren was on a regular baby formula before that, and due to her age (a 
year and a half), Pediasure provided the nutrients she needs.  The one 
area where we've deviated from the dietician's advice is that we aren't 
giving Keren the total prescribed.  She was gaining TOO much 
weight--sometimes easy for our kids because they don't burn calories 
like active kids their age.  This is something Keren's PT watches very 
closely.  As she puts it, "Dieticians just don't seem to get the point 
that special needs kids who aren't mobile don't require all the 
calories 'typical' kids need!"  Fortunately the dietician we got 
understood that I knew how to play around with things and knew how to 
watch Keren's curve on the weight/height chart.

Anyway, in a nutshell, that has been our experience!

Loren (wife to Kraig, mom to Keren, T18, 20 mo.  :) )
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: