[tri-med] Re: high pain tollerance?

----- Original Message ----- 
From: "Jude Wolpert"
>i think kam also has the high pain tolerance but she cant tell me like
> alex!!!!  how i wish she could..

And thats why I ask Alex and then share with everyone. It was so frustrating 
when Alex couldn't tell me so I understand how you feel. Now that he can at 
least try and tell me, I feel I should share with those of you whose 
children still can't. Mind you it can be hard to understand what Alex means 
sometimes. We are still trying to really understand what he means when he 
says he feels "muddled". His pediatrician understands it and says it makes 
sense, I don't, not really........ But apparently Ritalin makes him feel 
less "muddled" and he feels more "muddled" when he is unwell. Muddled is a 
sign that he is sickening for anything from a cold to a Shapiro's crisis. 
Whats muddled??????

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (12 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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