[tri-med] Re: hesitancy to treat


In a message dated 10/27/01 12:32:24 PM, karens@xxxxxxxxxxxxxxxx writes:

<< A lot of times even that doesn't help Alex - of course I am the 
"delusional mum" and they KNOW I am exagerating what Alex can

do.......... >>

And Dom has never even been really sick, has basic survival reading skills, 
is able to count change and pretty much take care of himself. He is friendly, 
social and all together very appropriate. Today we went to the school 
carnival and he got a chance to talk to a lot of old friends and teachers. 
After, many told me how nice and friendly he was. What a change from when 
they had last seen him (end of eighth grade). I pointed out what a difference 
it made to get the appropriate treatment, in his case lithium. Why did it 
take him three years to get the right meds? The first doc that was treating 
him in the first residential facility was on the right track, but they 
discharged Dom because they couldn't handle him before the doc had a chance 
to work the right meds. The hospital and his last program had docs that were 
totally convinced that his issues were developmental and he just needed 
behavior mod, even though other staff thought mood swings were the issue. If 
the doc who can write scripts won't do it, won't treat it, what can you do. 
After they tried to discharge Dom from their program last winter for the same 
old reasons, and I had filed a stay put order, I asked the doc to please try 
lithium. The only reason he finally ordered the lithium was because he was 
certain it wouldn't work. And I begged him to at least give it a try. Amazing 
what happens when you treat the correct illness with the correct medication. 
But why the wait? Same old stuff. As soon as they saw the Tri 18, no matter 
how much info they had about him, they tried to treat developmental delays. I 
wonder what would have happened if that first doc would have had time to 
really follow up on his bipolar dx and try a few other meds until he hit on 
lithium at the beginning of 1999? 

Nan---Mom to Dom, 18; Tri18 Mosaic, Bipolar Disorder and Ali, 18; Autism, TS, 
ADHD 
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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