[tri-med] Re: hesitancy to treat



>>>>Oh Susan, you've found me out! When they get confrontational I'm like a
rabbit caught in headlights. I can rant and rave with the best when I'm safe
at home and all alone, which makes me pretty useless.>>>>>>>


that reminds me of when I asked the new pead to refere us to an orthopedic
surgon re: her lordosis,kyphosis, and scoliosis as well as the osteoperosis
( WAY TO MAY OSIS'S )  anyway he tried to brush me off by saying that kids
like Rebecca.........I looked him in the eye and said that it was a real
drag breaking you own kids bones......and that I didn't want to find out in
5 yrs that I could have braced her but cause I didn't she would need rods in
her back.......we got the appt.  one thing to do Catherine is take someone
with you to the appt.....it gives you strength  and helps to remember what
is said........an other way is to ask the hospital adovcate to be there if
it is a sticky meeting

Susan mom to Rebecca trisomy 18 moasaic 10 years old!!!! and Mark LD/ADD age
9 wife to Glenn.
Newcastle Ontario Canada
hardyboys@xxxxxxxxx



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: