[tri-med] Re: hesitancy to treat

<< all were amazed at how well she
was
doing but the dr.  he had absolutely no interest in her what so ever.>>

Ok, I know that some people are just plain ignorant(and I mean this in the 
"not knowing" way)...but JERKWAD!

Michelle Wilson, mother to Faren and wife to Rick



>From: "Jude Wolpert" <jfwolpert@xxxxxxxxxxx>
>Reply-To: tri-med@xxxxxxxxxxxxx
>To: <tri-med@xxxxxxxxxxxxx>
>Subject: [tri-med] hesitancy to treat
>Date: Sat, 27 Oct 2001 09:16:40 -0600
>
>
>this brought back the horrible memories of the first time kam was in 
>crisis.
>respitory failure for rsv.  they bagged her in the ambulance all the way to
>the hospital and to a room.  the resident (the dr on call would not even
>come in to see her) just wanted me to hand him kammie's DNR.
>
>they were not willing to do anything for her.  while we were fighting (of
>course i was hysterical and had snot running down my face) a respitory
>therapist started working on her.  we got her sats up a bit and they left 
>me
>with her on o2 for the nite.
>
>the next morning the dr could not believe she was still around.  the fire
>ambulance guys were in shock that she was still alive.  we checked out with
>hospice again that day.
>
>when kammie was about 18 months old and had her gi bleed we saw that dr and
>respitory therapist and nurses again.  all were amazed at how well she was
>doing but the dr.  he had absolutely no interest in her what so ever.
>jude, mom to derek-15, kelsey-13,  kameron-4-full t18
>golden, colorado  usa
>----- Original Message -----
>From: "Karen Schuler" <karens@xxxxxxxxxxxxxxxx>
> > Its funny but now if I mention to people at the hospital about the
>"unwritten" policy of not treating children with T-18 they dont
> > even deny it. In fact most agree and some will even enter into 
>discussions
>about the right and wrong of this.
> >
> > We, meaning all of us, have a long way to go before attitudes change
>everywhere..........
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>


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                       www.trisomyonline.org
                  Families Helping Families On-line

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