[tri-med] Re: heart surgery

Hi Pam...
I have Devon's story all typed up...do you want it...even though he hasn't
had heart surgery?? You already have several pictures I've
emailed...although I have several more in an envelope ready to snail mail
when you email me your snail mail address :o) You can print out that other
email where I described what happened with the 3 in 1 surgery and the
surgeon who didn't want to do it solely based on Devon's DX until his
geneticist went to bat for Devon :o) He also had his cleft repaired and
tubes put in at 9 months...no problem...
Not getting it done would have continued to make his feeding VERY time
consuming and hard and more risky...doing the surgery made eating for him
MUCH better!!!!
Love,
Penny...loving and devoted wife to Joe, the best husband in the world...mom
to Nick (13 yrs old...lover of Yu Gi Oh, RollerCoasters, Chocolate Icecream
with Ovaltine sprinkles), Devon (9 yrs...lover of Barney, Blue, Bear in the
Big Blue House, Elmo, Stuart Little, Teletubbies and food in general...Full
trisomy 13 w/balanced translocation 5 and 13) , and Trooper the Wonder
Dog...our 6 or 7 year old male yellow lab adopted from FL Lab Rescue
12/13/02 :o)
Please visit the webpage my wonderful friend Karen made for me on our
trisomy listserv at...
http://www.trisomyonline.org/victor.htm
AND...Devon's moment of glory in Exceptional Parent Magazine...
http://www.eparent.com/familiarfaces/ffaces_4_01.htm
AND...see our 3 handsome boys on FL Lab Rescue's website at:
http://www.labradorrescue.net/success/index.html

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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