[tri-med] Re: g-tube extension maintenance

Thanks so much for the helpful info, Karen!  I'll be passing this along 
to our friends.
A neat little side note to this story:  These friends were the ones who 
first introduced us to the T18 world.  Their little girl was T18 and 
lived almost three years (I've mentioned this on the list before).  She 
never had a g-tube, due to other health complications, but there was 
lots of common ground with the family when Keren was born.  They 
introduced us to SOFT and also to this listserve (though they're not a 
part of it now).  Now a year later they're calling us for advice!  It's 
pretty cool how reciprocal help can be. :)

Loren (wife to Kraig, mom to Keren, T18, 11 mo. and counting! :) )
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075

On Saturday, September 20, 2003, at 07:53 AM, Karen wrote:

> ----- Original Message -----
> From: "Kraig Warnemuende"
>>> Our friends' concern is
>> that he'll play with, yank at, explore his extension, and cause all
>> sorts of probs for himself.  Have any of you run into this?
>
> We had this with Alex. He was 14 months old when he got the long tube 
> and it
> was in for 6 months. Just the right age for him to be exploring with 
> hands,
> crawling and cruising.



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