[tri-med] Re: growth/pcos

Hi Michelle.  I wish I had some advice to give but I'm still trying to deal 
with it.  At first some of my facial hair eased up but it seems to have come 
back.  I go to the doctor next week for my yearly physical and will have her 
check my blood again.  Yaz is very expensive which is why I have to have the 
generic - my insurance won't pay for the name brand.  Period.  My doctor 
doesn't have any samples of it.  As for losing weight, I was told to watch what 
I eat (I do as I put it in my mouth lol) and exercise a lot.  I am not an 
exerciser so that's not going to happen.  I recently had to give up caffeine 
which means no chocolate and none of my favorite pops due to my heart - I have 
PVCs which are extra heartbeats.  I have lost some weight in regards to that.  
I suppose my husband is going to start making me walk when it gets nice enough. 
 Anyway, tell Molly to keep her chin up and even if she does have a little meat 
on her bones there are lots of guys who like that.

 

Kim   
 
> From: jwaite@xxxxxxxxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: growth/pcos
> Date: Wed, 8 Apr 2009 08:39:58 -0400
> 
> 
> ----- Original Message ----- 
> From: "Kim Ihlenfeldt" <kimihlenfeldt@xxxxxxxxxxx>
> The doctor put me on Ocella, the birth control generic of Yaz or something 
> like that.
> 
> Molly was diagnosed with Polycystic Ovaries nearly 1 year ago. She was 
> having some of the unpleasant symptoms. :-(
> 
> We went to the dermatologist (for hirsuitism).
> He had her start on Yaz (thank goodness I can get it for free---samples at 
> work. That stuff is expensive!!!). Because it is a BCP that contains 
> spironolactone.
> That we had to see the family doc because the dermatologist doesn't deal 
> with that end of the equation. lol
> 
> Then 3 months later he started her on spironolactone itself.
> This drug blocks the androgen receptors, androgen being a male hormone. 
> Ovaries produce it but in PCOS they can overproduce it; apparently due to 
> the cysts.
> There are multiple side effects when that happens, hirsutism being just one.
> 
> At the 6 month visit Molly has less of the facial hair growth and the hair 
> was less coarse. We go back in another 6 months and he'll decide if we need 
> to up the spironolactone.
> 
> The weight loss thing with this is also something that Molly struggles with.
> We just had some fun (NOT) shopping for a prom dress in departments that 
> cater to the size 0, 2, 4, 6, 8 set where I saw tears escape in the dressing 
> room.
> Luckily we found a gorgeous cocktail dress: ballerina length very full skirt 
> of black lace over a cream underdress, that she can actually wear for other 
> events, that looks A+ on her and she adores.
> 
> Any tips for living with PCOS would be appreciated as we are in the early 
> stages around here.
> 
> Michelle mom to Alex (21, partial trisomy 14 mosaic) and Molly (18)
> MichiganUSA 
> 
> Building ___ooOOoo__ Rainbows
> www.trisomyonline.org
> Families Helping Families On-line
> 

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