[tri-med] growth hormone testing


----- Original Message -----
From: "Karen Schuler" <karens@xxxxxxxxxxxxxxxx>
> The fun with them comes from the fact that the arganine makes him sleep
>and he has this nasty habit of stopping breathing...........

So it's the sleep issue and not the test its self then?
Of course in a hospital setting for the test you don't have all Alex's bells
and whistles do you?

For us it was the induced hypoglycemia testing that was awful. Alex turned
3 that week and I was preg for Molly. We had to drive over 1.5 hrs and he'd
been NPO since midnight. This is a child who had NO body fat to spare and
feeding him was a challenge. He wasn't even drinking out of a cup by then.
No Internet at that time (1990)--it's amazing how much LESS information I
had about EVERYTHING to do with Alex and no easy, if any, resources
available. We've come a long way baby!

After we get there to get going the dr tells us we MUST keep him awake
during the tesing. When they drop the blood sugar that drastically it makes
the patient sleepy and they can slip into a hypoglycemic coma if not
monitored carefully. That was a long 3
hours.................scary............

I much prefered the clonadine/argenine testing. It was in the hosp and there
was a tv/vcr in the room so I'd taken some games, books, a few movies. But
Alex was only awake for the first 45 min of the 4 hr tests and after that he
was sleeping with only occasional rousing. Draining but not in the way the
first GH test had been.

Michelle mom to Alex (14,partial trisomy 14 mosaic) and Molly (10)
MichiganUSA


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