[tri-med] Re: growth hormone

----- Original Message -----
From: "Jayne and Mark Wright"
> I talked with a T-13 family and they said they heard of T-13's getting
Wilm's tumors.  I told her I thought it was just T-18's.  Has anyone heard
of a T-13 with Wilm's??

No the alert is just for 18 disorders or at least it was last time I checked
with Dr Carey which was 12 months or so ago. Though I know a few T-13
families who have the scans anyway. However having said that if the child
has mosaicism, particularly if they have hemi-hypertrophy then yes they are
at increased risk and should have regular scans. In that case it is the
mosaicism though and not the T-13.

Dennette do you have any other info??

Love comforteth like sunshine after rain.
-William Shakespeare

Keep Looking for Rainbows!!!
Karen, Mum to Alex (6, T-18 mosaic)
Sydney, Australia
http://members.optushome.com.au/karens
http://www.trisomyonline.org

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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