[tri-med] Re: growth

Thanks.  I do think, however, that all of us deserve to have some time to say 
poor me once in a while.  I do once in a while and then I look at Candace and 
see how wonderful she is and that helps to make it better.  It's a wonder how 
magical our kids are.

 

Kim
 
> Date: Mon, 13 Apr 2009 16:23:44 -0700
> From: tri18412@xxxxxxxxx
> Subject: [tri-med] Re: growth
> To: tri-med@xxxxxxxxxxxxx
> 
> Kim,
> Awwww.  I was just contemplating the fact that Annette is eight years old.  
> Eight years.  I've been doing this for EIGHT years.  No wonder I'm so tired 
> all the time.  Then I read your email and that last little sentence you put 
> in there just made me suck it up, stop whining, oh, poor me, and get up and 
> go hug my chunky monkey and fax that application for summer camp, fax that 
> physician release form to the pcp, and find a file folder for all the CLASS 
> paperwork that is already piling up.
> 
> Thanks,
> 
> Annette
> 
> 
> 
> --- On Wed, 4/8/09, Kim Ihlenfeldt <kimihlenfeldt@xxxxxxxxxxx> wrote:
> From: Kim Ihlenfeldt <kimihlenfeldt@xxxxxxxxxxx>
> Subject: [tri-med] Re: growth
> To: tri-med@xxxxxxxxxxxxx
> Date: Wednesday, April 8, 2009, 8:10 AM
> 
> I would think that picking a child up continously that weighs over 20 lbs 
> would
> take a toll on that body. My husband does manual labor and tosses boxes that
> weigh upwards of 75 - 100 lbs during the day, most of the time 12 hours a 
> day. 
> I could never do it. I know how his back is at times and his knees. I could
> hear his knees pop at times. Personally I think Annette sounds adorable. It
> sounds like she is growing and thriving which is great! Keep up the good work.
> 
> 
> 
> Kim
> 
> > Date: Wed, 8 Apr 2009 05:12:18 -0700
> > From: tri18412@xxxxxxxxx
> > Subject: [tri-med] Re: growth
> > To: tri-med@xxxxxxxxxxxxx
> > 
> > Annette will be 8 years old this Sunday. She doesn't grow up but
> grows out. When she was born she weighed 4.5 lbs. At one year old, she weighed
> 16 lbs. Once she got trached and stopped getting so sick, she started gaining
> weight out. Now, she is a chunky monkey. She's 36 inches long and 48 lbs
> wide. lol She is causing major muscle/joint trauma for me. I buy ibuprofen by
> the caseload.
> > Annette
> > 
> > --- On Mon, 4/6/09, Kim Ihlenfeldt <kimihlenfeldt@xxxxxxxxxxx>
> wrote:
> > From: Kim Ihlenfeldt <kimihlenfeldt@xxxxxxxxxxx>
> > Subject: [tri-med] Re: growth
> > To: tri-med@xxxxxxxxxxxxx
> > Date: Monday, April 6, 2009, 7:09 PM
> > 
> > Hi. Candace is big for her age as well - she is in the 96th or 97th
> percentile
> > for height and around 75th for weight. Basically, she's a beanpole.
> Her
> > shirt size is around 6 or 7 and her pants are around 5. But remember,
> she's
> > only 3. Her shoe size is around 10 1/2 (US). Cameron, her brother who is
> 10,
> > wears a 2 1/2, which is 5 sizes bigger. Candace doesn't take Pediasure
> but
> > she sure does eat like a horse. She actually eats more than Cameron or me
> in
> > one sitting. I look at food and gain weight but the doctor diagnosed me
> with
> > PCOS and basically told me that I'll never lose weight. Ah well.
> Candace
> > grows up but not out which makes buying clothes for her hard. Cameron, on
> the
> > other hand, is like my husband and me - has a little meat on him (I have
> more
> > than a little lol). Candace also has heart issues and while she was a baby
> she
> > had to take Benecal to increase her caloric intake and put a little meat
> on her
> > bones. After she was on that a while she just took off.
> > You didn't mention how old your daughter is?
> > 
> > 
> > 
> > Kim, wife to Kerry (complex balanced translocation between the 9, 15, and
> 18th
> > chromosomes), mom to Cameron, 10 (same chromosomes as dad), Cayden T18
> (1-16-02
> > to 1-16-03), and Candace, 3 (Partial Trisomy 15 and 18)
> > 
> > > Date: Mon, 6 Apr 2009 15:16:31 -0700
> > > From: tri18412@xxxxxxxxx
> > > Subject: [tri-med] growth
> > > To: Tri-Med@xxxxxxxxxxxxx
> > > 
> > > Wow, I'm reading all of the emails about how everyone's kids
> are
> > small. Why do I have such a humongous child? Annette gets only 12 ounces
> of
> > Pediasure a day. That's it. She wears a size ten in shirts and 8 in
> pants
> > (she's short). She had an endocrinologist visit and they checked her
> > thyroid, her bone growth and a dozen other things. Everything was normal.
> I
> > would think that with her heart and lung issues, she would be itty bitty.
> Damn
> > heredity. Just like the momma, eats next to nothing and still gains
> weight.
> > > Annette
> > > 
> > > 
> > > 
> > > 
> > > Building ___ooOOoo__ Rainbows
> > > www.trisomyonline.org
> > > Families Helping Families On-line
> > > 
> > 
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> > 
> > 
> > 
> > 
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> 
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