[tri-med] Re: :grommets and hearing

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Hi to all,=0D
 =0D
Kye is ready to go back in on monday for another surgery (no. 15) for mor=
e
grommets.  It seams to be after every time the grommets fall out Kye has
more hearing loss and is now 80% of hearing loss in his left ear and want=
ing
to  give him hearing aides.  Has this happened to anyone else.=0D
 =0D
Tanya (mum  to Kye t14m)=0D
 =0D
-------Original Message-------=0D
 =0D
From: Vicki Christensen=0D
Date: 23/05/2008 11:37:59 PM=0D
To: tri-med@xxxxxxxxxxxxx=0D
Subject: [tri-med] Re: support groups=0D
 =0D
Hi Tanya. We live in San Diego, CA. If you ever want to chat offline my=0D
email is=0D
vchristensen@xxxxxxxxxx=0D
 =0D
 =0D
----- Original Message -----=0D
From: "boris" <typsy@xxxxxxxxxxxxxxx>=0D
To: <tri-med@xxxxxxxxxxxxx>=0D
Sent: Thursday, May 22, 2008 5:53 PM=0D
Subject: [tri-med] Re: support groups=0D
 =0D
 =0D
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> Hi Vicki,=3D0D=0D
> =3D0D=0D
> My son also has t14mosaic Kye is 4 and a half. We live in Australia, wh=
at=0D
> part of the world do you live in.=3D0D=0D
> Tanya =3D0D=0D
> =3D0D=0D
> -------Original Message-------=3D0D=0D
> =3D0D=0D
> From: Vicki Christensen=3D0D=0D
> Date: 23/05/2008 10:39:22 AM=3D0D=0D
> To: tri-med@xxxxxxxxxxxxx=3D0D=0D
> Subject: [tri-med] Re: support groups=3D0D=0D
> =3D0D=0D
> Hi. I joined a support group of sorts about 2 years ago when Luke was 1=
 1=3D=0D
> /2.=3D0D=0D
> He also has a rare chromosome disorder and there are no t-14 kiddos in =
ou=3D=0D
> r=3D0D=0D
> area. I went to the group that was affiliated with our Early Start prog=
ra=3D=0D
> m.=3D0D=0D
> What I found is that although each child was unique, we all share so ma=
ny=3D=0D
> of=3D0D=0D
> the same issues as far as therapies, education, financial, even=3D0D=0D
> developmental. Sure, if there was a group for t-14 children, I would go=
 i=3D=0D
> n a=3D0D=0D
> heartbeat, but the group I did attend has been very helpful.=3D0D=0D
> Vicki Christensen=3D0D=0D
> ----- Original Message -----=3D0D=0D
> From: <SHAMOND73@xxxxxxx>=3D0D=0D
> To: <tri-med@xxxxxxxxxxxxx>=3D0D=0D
> Sent: Thursday, May 22, 2008 2:32 PM=3D0D=0D
> Subject: [tri-med] Re: support groups=3D0D=0D
> =3D0D=0D
> =3D0D=0D
>> Jason is going to be one next month and i feel ready and feel the need=
 =3D=0D
> to=3D0D=0D
>> get involved in some type of support group, because he has such a rare=
=3D0D=0D
>> chromosome trisomy, i know there are no trisomy 17 groups in my=3D0D=0D
>> area..........should=3D0D=0D
>> i join a trisomy 21 support group, an 13/18 group?? .....a  CP support=
=3D0D=0D
>> group,=3D0D=0D
>> i don't know what type of group i should be looking for in  terns of t=
h=3D=0D
> at=3D0D=0D
>> would have issues the most in common with jaon.=3D0D=0D
>>=3D0D=0D
>>=3D0D=0D
>> any advice or ideas?? how do i find a support group??=3D0D=0D
>>=3D0D=0D
>> Sharon=3D0D=0D
>> mom to Jason T 17p mosaic, 11 months old..... Lauren 3 yrs old, and  w=
i=3D=0D
> fe=3D0D=0D
>> to=3D0D=0D
>> Sam=3D0D=0D
>>=3D0D=0D
>>=3D0D=0D
>> **************Get trade secrets for amazing burgers. Watch "Cooking wi=
t=3D=0D
> h=3D0D=0D
>> Tyler Florence" on AOL Food.=3D0D=0D
>> (http://food.aol.com/tyler-florence?video=3D3D4&?NCID=3D3Daolfod000300=
00000=3D=0D
> 002)=3D0D=0D
>>=3D0D=0D
>>=3D0D=0D
>>                  Building ___ooOOoo__ Rainbows=3D0D=0D
>>                       www.trisomyonline.org=3D0D=0D
>>                  Families Helping Families On-line=3D0D=0D
>>=3D0D=0D
> =3D0D=0D
>                  Building ___ooOOoo__ Rainbows=3D0D=0D
>                       www.trisomyonline.org=3D0D=0D
>                  Families Helping Families On-line=3D0D=0D
> =3D0D=0D
> =3D0D=0D
> =3D0D=0D
> --=3D0D=0D
> No virus found in this incoming message.=3D0D=0D
> Checked by AVG.=3D0D=0D
> Version: 7.5.524 / Virus Database: 269.24.0/1459 - Release Date: 21/05/=
20=3D=0D
> 08=0D
> 5:34 PM=3D0D=0D
> =3D0D=0D
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>                  Building ___ooOOoo__ Rainbows=0D
>                       www.trisomyonline.org=0D
>                  Families Helping Families On-line=0D
 =0D
                  Building ___ooOOoo__ Rainbows=0D
                       www.trisomyonline.org=0D
                  Families Helping Families On-line=0D
 =0D
 =0D
 =0D
--=0D
No virus found in this incoming message.=0D
Checked by AVG.=0D
Version: 7.5.524 / Virus Database: 269.24.0/1462 - Release Date: 23/05/20=
08
7:20 AM=0D
 =0D
=2E


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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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